Kidney Disease
1,086 members552 posts

Praying for a miracle

Hello everyone my name is Crystal. My 15 year old son has had kidney disease since he was 2 years old. He started with nephrotic syndrome that later developed into end stage renal disease. He was put on dialysis in 2009 but he was not in total renal failure. It has been a complicated journey where we have actively been trying to get listed for transplant for the past 4 years. Because he has been on dialysis for so long now it it's starting to affect other organs and cause other complications. The first time he was denied to be put on the list was because of his size... but doesn't dialysis stunt your growth? Especially if you have been on it most of your life? Now he has other serious issue with his blood pressure because of the stress of going to dialysis. Due to this they took both of his kidneys out in February. Didn't help like they had hoped. He is now on dialysis 6 days a week and his quality of life is non existent.. He honestly believes the hospital will never approve him for transplant because everytime he goes up for review he is denied for reasons that seem to be caused by dialysis.. We feel very helpless with this process. Praying for a miracle

15 Replies
oldestnewest

My prayers for you and your son🙏🙏🙏

1 like
Reply

Seems just the opposite of what one would expect. I believe with respect to other transplanted organs, youth trumps age. Are you saying that even if you or your husband were willing to donate a kidney in order to move your son to the top of the list for a live transplant, that he himself would be denied because of his health status? Hopefully that's not the case.

Reply

Yes this is correct. We have a kidney to give him but they will not approve the surgery

Reply

I don’t understand the health system but I do understand God’s word. In all my dark places He has been my great physician and my true answer to all things. I do not know what He has in store for you or your son but be comforted in the fact that HE IS ALWAYS IN CONTROL Always. He is holding him close and He loves him so much. My church and I will be praying for Tracen. May God comfort u and your son and family in this difficult time. Rest in His arms and believe HIS REPORT not always the doctors. Trust in His love. Praying hard for u all

3 likes
Reply

God bless you!!!

Reply

I just read this answer. Thank you so much I needed these words tonight.

God Bless you. You have no idea what you did for me tonight.

1 like
Reply

We are here in NC, USA. Hurricane Florence has revastated our county and I was feeling helpless...until I read what u just said. U my friend do not know how wonderful it makes ME feel to know I could help just one person through prayer and kind words. It just confirmed to me that God knows and is in control of all our lives and He cares for u and loves u. So hang in and hang on....God still has a plan for your life! Thank YOU for that! Still praying for all!

Reply

I'm so sorry your son and family are having to go through this. We will keep you all in our prayers. Would you be willing to share his name and I will ask others to pray for him as well.

2 likes
Reply

Thank you his name is Tracen

1 like
Reply

Prayers are being sent out.

1 like
Reply

Prayers for your son and his family.

2 likes
Reply

Thank you! ❤️❤️❤️

Reply

Hi Crystal, joining you in your prayers for a miracle for your son and i hope you don't mind.

3 likes
Reply

Thank you so much!! ❤️❤️❤️

Reply

Stay strong! Remember that miracles do happen when we least expect them.

Sending you hugs, my prayers and healing thoughts.

Bet 🙏🙏🙏

1 like
Reply

You may also like...