Hi Guy’s.. New here, but think I may be getting closer to my actual problem as time goes by.
I’ve had muscle aches and pains for years now (54 years young) and have been to the docs to see what it is... I’ve been tested for most things but never had inflammatory markers (well.. it’s been on top limit) so they never went this way... More Neuro, infection or Physio etc... all came back negative. I did have UC years ago which is another inflammatory issue so may be go hand in hand?... I started going to the gym to and keep myself moving and so I didn’t ache as much.. all worked well for years.. maybe a slight decline but I am getting older.
But whatever I have has taken a bit of a step change of late. I’ve sort of got worst in winter and better in summer I think for the past few years.. not sure its seasonal, more a good period / bad period kind of cycle and within this, smaller cycles where it gets better / worst.
But this year has been a sod. I’ve felt very bad all year so decided to try running and do a 10K in August (kill or cure). I’m weak in the core and despite doing what I can at the gym, I don’t appear to get it better.. stepping over things in the garage is a problem .. so I thought running may help.
Training went okay (although it was very hard work.. much harder than others or so it appeared?) and in August I did the 10K.. but I did find whilst doing this that my ability to stand for long periods was going downhill fast.. I could run and walk, but standing did me in... This has progressively got worst until I’m at a point now where I can stand for about 10 mins and them need to sit down.. rest and I’m off again, but keep walking or it will seize up. Also walking is a problem now as it gets worst.
Needless to say, running has come to a halt as my doc said it was my spine etc.
My back cracks for fun now and I get burning sensations either side of my spine. I also get pulling type of sensations and try do anything new like I tried Pilates, the muscle pain a few days after was mad.. like DOM’s x 10 with stabbing, pinching etc...
I also get very out of breath... a day in the garden now last 15 mins and I have to come in and sit down.
The last 4 weeks has become quite imposable.. I have the back and standing issues, I’m finding it hard to breathe as my chest is quite tight, I kind of have a pulling from my back into my abs and lungs making it hard to get a deep breath at times, and I have throat issues. At first I thought this was GERD, but it’s like I have a hard to swallow sensation in my throat.. I can get food down, just feels not normal if you know what I mean. And I’m sure its now going into my shoulders?
So I’ve been back to the doc’s and she can tell me what I don’t have, but not what I do have. I’ve described everything to her and she wants me the see muscular skeletal again. I’ve asked to see rheumatologist but she’s having none of it as I don’t (or at least didn’t) have the markers.
But to me it’s like I’m seizing up.. like my muscles need oil? They ache, I get stiffness, and they are getting weaker.
I have noticed of late that it’s there when I get up and maybe works off a bit after I’m moving, where as before, it would just come on over the day.. Oh, and one more thing.. I could sleep at the drop of a hat.. washed out most of the time.
Does any of this add up at all.. does it sound like some sort of muscle inflammation disease?
Any comments would be gratefully received.. Many thanks