Hi: Hi I am new here. After 5 years of being... - Myositis UK

Myositis UK

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Muff20 profile image
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Hi I am new here.

After 5 years of being very ill and having to give up work I am finally with some Drs who are listening. Slowly getting diagnosis. Was diagnosed with connective tissue disease last summer. Now I am being tested for myotisis. After reading about the condition symtoms certainly fit.

Anyone have any information that would be useful on this long journey?

Thank you in advance.

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Muff20 profile image
Muff20
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4 Replies
Catpuss66 profile image
Catpuss66

Head over to Facebook myositis Uk community forum, bit more active than here , load of info very lovely group of mixed ages men , women and children ( their parents). Good luck

Muff20 profile image
Muff20 in reply to Catpuss66

Thank you. Joined there yesterday too😁

Catpuss66 profile image
Catpuss66 in reply to Muff20

See you there!!!!, I think I have a MCTD but rheum thinks primary sjogrens with muscle weakness, going for 2nd opinion.

Muff20 profile image
Muff20 in reply to Catpuss66

Yes see you there. Diagnosis is a tricky one. I am with my 3rd rheumatolgy consultant 😁

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