Hello everyone my name is Raj and after many years of struggling with walking and other things, I ended up having a stroke and it was then when I was in hospital 4 weeks later after every blood test scan I was diagnosed with polymyositis in January 2017, currently I,m taking 60mg of perdisidone daily and I I try to excerise by walking daily for 20 t0 30 mins 2 times a day at the moment is their any advice.
thank you everyone Raj
Try and cope with any side effects of the prednisolone. I have taken it for 24 years and together with immunosuppressants it is an essential med for me and now down to 5mg maintenance dose. Carry on walking, I found little and often the best while I could walk. All the best for both your treatment at the moment and future health. Best Wishes to you.
thank you Katie-G I'm taking it one day at a time
Sounds like you had problems for years that were not diagnosed properly, that's a sad situation that I've noticed in many people's stories. Good that you are getting treatment now, thanks for sharing your story.
Once the treatment starts to work you'll start to get your strength back and you'll eventually feel a lot better. Coping with the drugs is a challenge, but you'll hopefully get to a point where you can come off the steroids, I did, and now just take them in short bursts if I absolutely have to. Are you on an immunosuppresant yet?
Take care exercising at first, listen to your body.
not yet starting the ivig course of treatment in feb over a 6 moth period
Hi Raj. I am sorry you have PM. I was diagnosed in 2012 and also started on 60 mgs of prednisone daily, a month later they added Azathioprine. I am well and stable and tapered and finished the steroids in December 2013. You will need time and patience to get there but you will get there. Walking is great. I started out walking, do ask anything at anytime. I usually have most of the answers by now. There is life after polymyositis. Best wishes. Mary
Polymyositis 
Just been diagnosed 
Dermatomyositis 
