Hi

[Muff20]

Hi I am new here.

After 5 years of being very ill and having to give up work I am finally with some Drs who are listening. Slowly getting diagnosis. Was diagnosed with connective tissue disease last summer. Now I am being tested for myotisis. After reading about the condition symtoms certainly fit.

Anyone have any information that would be useful on this long journey?

Thank you in advance.

[Catpuss66]

Head over to Facebook myositis Uk community forum, bit more active than here , load of info very lovely group of mixed ages men , women and children ( their parents). Good luck

[Muff20 in reply to Catpuss66]

Thank you. Joined there yesterday too😁

[Catpuss66 in reply to Muff20]

See you there!!!!, I think I have a MCTD but rheum thinks primary sjogrens with muscle weakness, going for 2nd opinion.

[Muff20 in reply to Catpuss66]

Yes see you there. Diagnosis is a tricky one. I am with my 3rd rheumatolgy consultant 😁