So today I am in a bed in the local DGH with IV steroids for 3 days. It’s really scary. I’m a healthy (I thought) 34 year old male with wife, 2 year old girl and a baby boy on the way in 4 months.
None of our family or friends have really lived with any form of chronic condition and the Consultant thinks I had an acute attack. I could barely walk I was so stiff. Couldn’t get up unaided then what sent me to doctors for second time in 2 days (after literally never attending before) was my arms getting seized.
Has anyone else ever had acute episode. What’s recovery like. I’m feeling better but I worry if in 5 years time I won’t be able to lift my girl etc.
Plus a lot of googling last night whilst on a very depressing ward seemed to indicate links with some pretty scary stuff ifbthe condition isn’t scary enough to start!
I’ve been lucky healthy. Not worried much about weight, what I eat of proper regular exercise. Bits here and there some team sports etc. I guess I’ll have to make some changes but will I still be able to play hockey etc?
I think I’m just looking for some reassurance people live with the condition well.