ο»ΏWhat is CVS? (Has nothing too do with ... - My MSAA Community

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ο»ΏWhat is CVS? (Has nothing too do with MS))

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’26 Replies

ο»ΏBecause I can't seem to do anything half way, let me explain alittle bit what CVS is .1 st? It's Not the drug store! It's not πŸ˜‚ it stands for Cyclic Vomiting Syndrome. It's horrible! I would not wish it on any one! I still sleep on the couch because of it... I wake up every morning panicked because of it. And I don't trust notta one of my drs anymore! Is that bad?πŸ€” Yup... I have PTSD πŸ˜‚πŸ€£πŸ€£ Anyhow, read more here about it my.clevelandclinic.org/heal...

ο»ΏπŸ€—πŸ’•πŸŒ πŸ¦ˆ

ο»Ώps anyone else having trouble typing what you want? In a post? πŸ€”

26 Replies
β€’
Amore55 profile image
Amore55

Jes, it sounds horrible.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Amore55

Ya know whoever said that saying "What doesn't kill you, makes you stronger?" Never had CVS!πŸ˜‚πŸ€£ πŸ˜πŸ€—πŸ’•πŸŒ πŸ¦ˆ

bxrmom profile image
bxrmom

So sorry you are going through this Jesmcd2 Meds no longer working for you?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to bxrmom

They are thank goodness!!! I also take zofran before I even wake up!πŸ€£πŸ˜‚ (Anti nausea) πŸ€—πŸ’•πŸŒ πŸ¦ˆ

falalalala profile image
falalalala

That is rough. I'm sorry you are dealing with that.

It sounds unpredictable even with knowledge of certain triggers.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to falalalala

The unpredictably is the worst of it, and it never ever ever went away πŸ™ til now!β˜ΊοΈπŸ€—πŸ’•πŸŒ πŸ¦ˆ

falalalala profile image
falalalala in reply to Jesmcd2

I'm glad you got a break.

I have problems with motion sickness since the MS diagnosis but I am able to avoid those situations....like swingsets,rollercoasters and sitting in the back seat of newer cars. They're way too smooth.

I hope it stays gone for you!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to falalalala

I don't know how you avoid swing sets, they are everywhere you goπŸ™ let alone rollercoasters! Yikes! πŸ€£πŸ€—πŸ’•πŸŒ πŸ¦ˆ

falalalala profile image
falalalala in reply to Jesmcd2

πŸ˜‚πŸ˜‚πŸ˜‚That comment made my morning.

Sandydemop profile image
Sandydemop

Dear Jes, it sounds awful so sorry! do you know what your triggers are? is there any medication?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Sandydemop

I'm on a med 2xs a wk. And sumatripan if it breaks thru. The nose spray works best but knocks me out cold! But it works!!! β˜ΊοΈπŸ€—πŸ’•πŸŒ πŸ¦ˆ

jimeka profile image
jimeka

No wonder you have been so ill πŸ€—πŸ€—πŸ€—

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to jimeka

My Angel! It's been a really long road my friend!! Thank you for sticking with me!πŸ€—πŸ’•πŸ¦‹πŸ«πŸŒ πŸ¦ˆ

hairbrain4 profile image
hairbrain4

My gosh, what a thing to have! So sorry you have to go through that. Hope you figure out what triggers your episodes so you can try to avoid some of them. PrayersπŸ™πŸ™πŸ™

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to hairbrain4

I'm doing my very best for sure! πŸ€—πŸ’•πŸŒ πŸ¦ˆ

kdali profile image
kdali

I'm sorry, this is terrible 😒 When did this start? I feel like you've been having GI issues for two years?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to kdali

Was hospitalized 2xs for it last yr. This yr the ER sent me home to die. 😐 (Still working through that sry) πŸ™ but yeah it's been going on for a while, just kept getting worse! Getting back to normal now!β˜ΊοΈπŸ€—πŸ’•πŸŒ πŸ¦ˆ

kdali profile image
kdali in reply to Jesmcd2

I'm so sorry to hear that 🀬 I hope that doesn't happen in the future πŸ€¦β€β™€οΈ Glad you're on the mend and enjoying the sharks!

twooldcrows profile image
twooldcrows

sure do ...hard to remember sometimes what i am trying to say ...so the doctors can't stop this junk ...i know i read the article but can't figure something out ...that is terrible no wonder you hate it ,with this every day is for the birds ...liquid dies work ? i know you have probably tried anything and every thing ...wish i had an answer for you or knew someone that had it and how they got it to stop...hang in there sweety ...i bet you don't like that for an answer either or the sweetie part either ...how about a bizzar nasty joke with a great looking hunk or strip dancers ....loves honey ...sure wish i had an answer ....πŸ˜™πŸ₯°πŸ₯°πŸ₯°πŸ₯°πŸ₯°πŸ˜πŸ˜πŸ˜πŸ˜πŸ€ πŸ€ πŸ€ πŸ€ πŸŒΊπŸŒΊπŸŒΊπŸŒ»πŸŒ»πŸŒ»πŸŒ·πŸŒ·πŸŒ·πŸŒΌπŸŒΌπŸŒΌπŸ˜ΈπŸ˜ΈπŸ˜ΈπŸ˜ΈπŸ˜ΏπŸ˜ΏπŸ˜ΏπŸ‘…πŸ‘…πŸ‘…πŸ‘…πŸ‘„πŸ‘„πŸ‘„πŸ‘„πŸ§šπŸ¦ΈπŸ¦ΈπŸ§šπŸ§šπŸ§šπŸ§šπŸ§šπŸ§šπŸ§›πŸ§›πŸ§›πŸ§›πŸ§žπŸ§žπŸ§žπŸ§žπŸ§žπŸ§žπŸ§žπŸ§žπŸ§žβ€β™‚οΈπŸ§žβ€β™‚οΈπŸ§žβ€β™‚οΈπŸ’πŸ’πŸ’πŸ’πŸ’πŸ’πŸ’πŸ’₯πŸ’›πŸ’›πŸ’œπŸ’œπŸ’œπŸ’¦πŸ’¦πŸ’¦πŸ’¦πŸ’€πŸ’€πŸ’€πŸ’€πŸ’­πŸ’­πŸ’­πŸ’­πŸ—―οΈπŸ—―οΈπŸ—―οΈπŸ—―οΈπŸ•πŸΆπŸ©πŸΊπŸŽπŸ¦„πŸ½πŸπŸͺ🐹πŸ¦₯πŸΌπŸ“πŸ£πŸ”πŸ¦˜πŸ¦¨πŸ‡πŸ°πŸ¦¦.....well did i get a laugh out of you ....loads of love and many blessings to get this horrible thing taken care of ....lots of prayers and more of them .....loves...take care ....

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to twooldcrows

I will take that hunk any day!! πŸ€£πŸ˜‚ Meds are doing a great job! Knock on wood! πŸ€—πŸ’•πŸŒ πŸ¦ˆ

BlanketTime1 profile image
BlanketTime1

sorry you're going through this!πŸ€—

JSSimp profile image
JSSimp

Prayers to youπŸ™πŸΎ

Morllyn profile image
Morllyn

Wow, not good!🫒

mrsmike9 profile image
mrsmike9

Oh my. That sounds horrible! It sounds like me at the opposite end. I have Colagenous Colitis. The 1st time it happened I lost 20 pounds in 14 days. I was so weak I couldn't walk. It's another auto immune disease.

I'd rather mine than yours, to be sure! I certainly hope you feel better very soon!

Raingrrl profile image
Raingrrl

Yikes! Sorry you are dealing with this!

Cutefreckles72 profile image
Cutefreckles72

Sorry you are going through this. Hang in there. Praying for you. πŸ™πŸΎ

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