I thought this was perfect! I remember finding this place some 8? Yrs ago? I was so scared, so confused... Not having a clue what MS was, or what it could, and can do...
Here was a place, that others said, Really? Me Too! And We Get It! What a relief it was!
Do you have MS? Me too🙂 Tell us about it! 🤗💕🌠
I was so happy when I found this place! The only places I found online after I was dxed in 2006 were a couple yahoo groups that not a lot of people chatted/posted on so it wasn't even worth being a part of those groups. Then when looking something up about MS I stumbled across the wonderful group! So happy to have found this group to come and ask questions, vent, share wonderful news and more!
Me too
Me too. i knew nothing and my (then) doctors were not helpful.I stumbled in the door here and you were here to welcome me along with several others. I've been here ever since because this is the place my MS is understood. A large part of that is due to you, dear Jes. You inspire, prod, and bring us smiles. Thank you.
I learned to not try and relate with people with same symptoms but from other illnesses. Especially those with neuropathy from chemo. I tried to empathize with someone telling me about their neuropathy from chemo and could tell they didn't appreciate it. However, talking about how others don't understand what we go through to try to continue doing as many things as we did pre MS with other MSers helps. Having to consider how much walking and how many stairs an activity requires before deciding if I can or want to do it was a definite adjustment.
Me too! My neurologist after telling me I had MS read me the standard paragraph about what it was and then said if I needed more info I should google it.
Wow, that is nearly as bad as my first Neuro telling me I was living under an axe that could drop at any moment. What is with these people??
Google it!? Gosh, that's cold. I was crying when I barely got out the words, 'what type?' She said, "Probably RRMS," and that was the end of that conversation. She also said SHE got to choose my treatment, & I was too ignorant to argue the point. Sorry.... got on a little rant there. Thank God for videos from Aaron Boster on YouTube. He taught me all I know. Sorry, I keep ranting. I am sorry you were told that. That was cruel.
Me too! I was really glad I found this place. Its a place to go when you need your spirits lifted, information, or just need to blow off steam. Thank you MSAA!
we all are in agreement on this wonderful site that helps us so much...the people realy understand what we are going through ....love all so much for so much help from you ...
Me too!!! I am so grateful for this site. Been living with the MonSter for over 25 years, and if I have learned one thing, it's that the only people who can really truly "get" what I'm dealing with are fellow MSers. Our family and friends can be caring and supportive and wonderful, but until you're living with this beast, you just cannot relate. Thank you, my M.S. family, for being there.
Me too! I was diagnosed in 2014 and wasn’t as shocked when they said MS because a co-worker said optic neuritis was a symptom her friend had. Still I was shocked and scared. Don’t remember how or when I found this group but I am so glad I did! TY Jes for all the work you do in posting the “funnies” that take a horrible day down to copeable. I’m very grateful for everyone on this site.
My "Me too's" are finding others who have "Brain Stabbing" migraine sharp pain!!! Try telling that to an intern in the ER lol We are Stronger together ❤️. NeeC
Memory Challenges
Ocrevus not for me
Dating
MS and things to avoid....
