Recently my wife with M.S had to stop our careers to pursue disability😞 this is the first time in my life I had to rely on savings instead of income and hope that disability/caretaker pay will provide 🤞🏽
It’ so nerve racking, I have a decent amount of savings but the waiting is 🤪. I’m her full time caregiver/husband and am racking my brain on how to take care of her and make an income….
Anyone else in this position? Any advise?
I am so sorry you are going through this! It must be terrifying. When I signed up for disability, I was (and still am, thankfully) independent enough to be left alone. My husband was working, but I was a nervous wreck. I only felt better after I hired a lawyer (who worked on a contingency basis - about 30% of what you get if you are approved) but no charge if you lose). Since it sounds like your wife is more disabled than I was, they may not deny her, so you might want to hold off on a lawyer unless they do.
A few thoughts. In this work from home era, would you have the keyboarding/computer skills to do some sort of office job from home? Could you do that and still take care of your wife? Could someone stay with her for an afternoon while you drive for Uber or Lyft? Those jobs are very flexible. There may be some sort of respite program that could help you, although you have to be careful not to disqualify yourself from the caregiver payments you've applied for.
Or you could investigate what you are entitled to as far as public assistance until the disability kicks in. I'm sure that others on this site will have some great ideas.
There are a lot of marriages that break up when someone has MS, so it's wonderful to see how devoted you are to your wife.
thank you for the advice, I can understand the nervous wreck part (I’ve turned grey overnight). I’ve paid for her handicapped van, which is a pretty new model. I’ve thought about using it as a specialty Uber or Lyft since it seems like that kinda service doesn’t really exist in the transportation industry.
That's a good concept.
hello & welcome Dustytryingmy best, sorry to hear about your wife. Hope things get better& will be praying for both of you. I don't have any advice sorry but I did get my disability a few years ago. Just make sure all the t's are crossed & I's are dotted. My Dr.s nurses filled out the paper work for us & it happened fast but I was almost 64. I don't know if that had anything to do with it or not.
Late onset of MS in late 50's?
It’s good to be old…sometimes
MS at it’s finest—a divorce
It’s so cold outside!
Really tough one today, sorry.
