Really tough one today, sorry. - My MSAA Community

My MSAA Community

9,433 members21,217 posts

Really tough one today, sorry.

RoyceNewton profile image
23 Replies

I believe this applies to us all, newbies and lifers as well. I just ask you to take a minute & think about it, & I do not know my answer yet.

On your very cozy deathbed with your loved ones surrounding you, you breath your last breath you are pronounced dead, what would you like your family to say about you?

As you are cremated or buried with more than just your family in attendance. same question what would you like the people in attendance to say or feel?

Everyday as we engage with ms, we make a choice, those choices again :-) What do we want to be said. How about we try just a little to make our story something worth saying. Even if it is in a tiny way.

I do not need to change the world, just smile in the mirror & put my undies on while standing up & not fall over,

What about YOU?

Royce

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
23 Replies
melack01 profile image
melack01

This is something to consider whether you are ill or healthy, young or old. If we thought of this more often it probably would influence some of the decisions we make in life. As far as my deathbed, I just do not want to be alone.

RoyceNewton profile image
RoyceNewton in reply tomelack01

yes the planet would be a lot better if people thought of here not somewhere else

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

The challenge is being able to look yourself in the eyes, and say, it's going to be ok.

Then you can share your SMILE with someone else.😊

🤗💕

J🌠

jimeka profile image
jimeka in reply toJesmcd2

Well said Jes 🤗

Raingrrl profile image
Raingrrl in reply toJesmcd2

You and I think similarly on this one Jes! Scary isn't it! I use looking myself in the mirror as my guide. If I can do that at night before sleep, I know I've stayed true to myself that day. And in the morning I do it to cheerlead myself into whatever needs to go on that day. I do these little rituals every single day.

Allen5280 profile image
Allen5280

I have found, in my particular case, I really don't need to do anything but survive the day. Go through the day and wherever I go smile, smile, smile. I have heard, numerous times, "your such an inspiration to me". If life keeps handing out lemons, open a lemonade stand. Others watch even though most times, I'm not aware they even care, others are watching. As life keeps burning down what I have built, I rise from the ashes and keep fighting. Other people take notice, when I think everyone has forgotten me. Yhen something happens and someone reminds me that I am an inspiration to others. An inspiration to keep on fighting, to keep their heads held high no maatter what is thrown at me. I'm fully aware of how all of y'all here on this forum are an inspiration to me, how much that helps me through the tough times. To know that I inspire others outside of our MS club, as I'm sure slot of us do and may not even be aware, makes each day a little more tolerable. If I were only thinking of myself, my own survival, I would have given up along time ago. It's knowing that my struggle can have such a profound impact on others lives, thats what keeps me going. Ive been told " If you can keep going through what you have, smiling all the while with such gratitude, I can make it too". "Your such an inspiration to a lot of others, you don't even know". I believe this is true for all of us. Like you have said before RoyceNewton We have a choice. The last breath I draw, will be one of gratitude, for my suffering will be at an end, and I will be at peace knowing I inspired! What greater gift could I ask for. Knowing that my suffering, my pain was not for nothing. We all have the ability to inspire others.

I don't know who said this; If you truly want to change the world, love those who won't ever love you.

Have a blessed day,

Allen

Morllyn profile image
Morllyn in reply toAllen5280

Well said Allen!

CynthiaS profile image
CynthiaS in reply toAllen5280

Amen

Raingrrl profile image
Raingrrl in reply toAllen5280

You have such a great attitude Allen5280 !

Linda3579 profile image
Linda3579 in reply toAllen5280

That was so well said Allen.

Your harmonica playing has been an inspiration to me. My favorite song is Hallelujah. You played it so beautifully! Thank you, Linda

Allen5280 profile image
Allen5280 in reply toLinda3579

Thank you Linda

KC0808 profile image
KC0808 in reply toAllen5280

Amen to that! Well said :)

RoyceNewton profile image
RoyceNewton

Well said allen

Morllyn profile image
Morllyn

I hope that my family says that they always knew that I loved them and that friends say that I was (or at least tried to be) a good, caring person.

Those are what I try for.

CalfeeChick profile image
CalfeeChickCommunityAmbassador

I asked my husband just recently what he would say if he watched me pass.. He said, "I'm gonna miss the Hell out of you!" Meaning that he loves me very, very much and doesn't want to even think about it. I'm not quite ready to talk of recent events involving the passing of a relative. But I've definitely made decisions on how I want my passing, afterward for immediate plans and let others go forward. Tooo serious for me right now. Lynn

RoyceNewton profile image
RoyceNewton

I must make sure the ladies I love know that, though I think they will always be part of me & in my life.

Royce

janetb1968 profile image
janetb1968

Just to know I was loved and I love in return and never hurt anyone xxxx ❤

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply tojanetb1968

Beautiful..

KC0808 profile image
KC0808

Royce I have given your words some serious thought and for me I would like for people to say what they feel now to me while I'm still alive so I can hear and feel what they say.

Thank you for being you Royce :)

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

The thing with me is, I'm at piece with dying. Been there done that. And this last time, well let's just say it made me see that it's going to be ok. 😊 I know that those that I love know it! And they will be ok.. 💕 so until then, I just do what I do.. which isn't much... lol

🤗💕

J🌠

RoyceNewton profile image
RoyceNewton in reply toJesmcd2

hmm maybe u had an experience a friend of mine had?

RoyceNewton profile image
RoyceNewton

good attitude

falalalala profile image
falalalala

"I wonder if her artwork is worth more now?";)

Not what you're looking for?

You may also like...

I forgot this yesterday, sorry​

Advice time again, do you have to get an MRI? They actually have open machines. it is like...
RoyceNewton profile image

Post 600 WOW 15 Feb 2020

That is a number I never ever thought I of all people, I would achieve. If every post is roughly...
RoyceNewton profile image

Something I noticed today

Something very interesting I saw today on my phone. The gist of it was that Parkinson's Disease...
RoyceNewton profile image

What a beautiful day today is,

What a beautiful day today is and actually yesterday as well. Now to be truly honest it has been...
RoyceNewton profile image

Poat 690 I am me and you are you 22 Sep 2020

G’day my beloved ms family. As always “YOU” have my best wishes for the day, last night, tonight...
RoyceNewton profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner
DanaMSAA profile image
DanaMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.