Interesting article!

[lbenmaor]

Yesterday I read that a hormone called estriol helps repair the myelin.

Is anyone taking this and has it helped?

Leslie

[mrsmike9]

Never heard of it.

[lbenmaor in reply to mrsmike9]

This is the first time I've heard of it also.

[Amore55]

Interesting. I take estradiol (not for ms). All I know is that my ms keeps fading away more and more. Don’t know if they are related!

[lbenmaor in reply to Amore55]

I'm glad your MS is fading away.😀

[Amore55]

Did you spell that correctly? Could it be estradiol? See my other post. Now you have me wondering if that is contributing to my continued improvement! I was already doing well before I started taking it, but I’m thinking that maybe it could be helpful.

[lbenmaor in reply to Amore55]

Yes, I spelled it correctly. I double checked on the computer.

[kdali in reply to Amore55]

Could be! There are human studies for estradiol and progesterone.

[Amore55 in reply to kdali]

Thank you, I appreciate you!

[Goldilockssearching]

Topically thru compound pharmacy. Nothing noted on MRI so I’d say no. My last appointment, my neurologist, and I had the conversation about remyelination and she explained to me how it’s so much more complicated than that. There is actually nerve damage that is present within our lesions that have nothing to do with myelination & they don’t know how to fix it.

[lbenmaor in reply to Goldilockssearching]

Thank you for the info.

[kdali]

I can't say the weeks I made my own during pregnancies made a difference in my scans, but I would be inclined to try any of those hormones while the MS is shushed by a med. I think it would take years to see improvements?

[lbenmaor in reply to kdali]

I agree!

[kdali in reply to lbenmaor]

I asked for any of them and was denied based on the potential for blood clots. The stylist I saw a few months ago is transitioning to female and takes 8mg of estradiol, the same dose used in a MS study, but nothing was mentioned about blood clots. Perhaps it's my age 🤷‍♀️

I do think it would take years to see MRI changes, but so many have relief when pregnant, right? A blood clot would not be helpful though. I hope you find out what I need to do 😵‍💫 I'm very curious!

[lbenmaor in reply to kdali]

I would not want blood clots !

[kdali in reply to lbenmaor]

Me either! I also want to keep my bones, so I'm curious about HRT and MS also.

[lbenmaor in reply to kdali]

Let me know what you find out.

[Hidden in reply to kdali]

Estradiol is different and more potent than Estriol . I’ve only read about Estriol being used for MS.

[kdali in reply to Hidden]

I probably have it confused with traumatic brain injury then, thank you!

[Hidden in reply to kdali]

No worries. I’ve just started looking into Estriol with hopes that my neuro will prescribe it. Nothing else seems to be working anymore so I figure I have nothing to lose. 😊

[kdali in reply to Hidden]

Let us know about it!

[lbenmaor in reply to Hidden]

Let us know what your Dr. said.

Leslie

[Tazmanian]

I'll be waiting for my neurologist to tell me about it

[Capamp]

I did a quick Google search and you are correct! They are doing research on how estriol affects MS. This seems to be the hormone that is protective during pregnancy. I myself experienced a great reduction in symptoms and had no exacerbations during my pregnancy. It's looking like more research is needed but this may be a potential treatment in the future. YAY!

[lbenmaor in reply to Capamp]

Great News!