Things that make you go hmmmm.... ๐Ÿค” I'v... - My MSAA Community

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Things that make you go hmmmm.... ๐Ÿค” I've been looking into southbound treatments and here is this article... very interesting!

Allen5280 profile image
Allen5280
โ€ข25 Replies

multiplesclerosisnewstoday....

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Allen5280 profile image
Allen5280
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anaishunter profile image
anaishunter

The cost of MS treatments is one thing that bothers me (a lot actually!). I understand that developing new medicine costs billions, MRI machines are high-end pieces of equipment that are also costly, so I am not expecting treatment to be "cheap".

However, the US is constantly on top of the list when it comes to the cost of treatment.

I feel that with 1 dose of DMT, we could feed many starving children in other countries. Is my life more important than theirs? One dilemma that I have not resolved yet for myself.

I can only praise organizations and people looking for cheaper treatments. The only action I have been able to take is getting my MRI for free as a participant to an MS study. At least I feel that the data is going somewhere for the use of a greater purpose.

Allen5280 profile image
Allen5280โ€ข in reply toanaishunter

anaishunter , I must agree wholeheartedly with you on the costs of medications and treatments. The hunger crisis is not only overseas, we have it right here as well. If it were not for the possibility that my decline would force me into full time care, I may not be willing to do it myself. Those costs could be even deeper into an already troubled system.

That is pretty awesome about being on a study, my hats off to ya!

Allen

carolek572 profile image
carolek572CommunityAmbassador

Yes, Allen5280 there's truth to meds being more 'affordable' in either Canada or Mexico. In fact, a couple of years ago, a major city in Massachusetts was encouraging their city workers to fill their meds in Canada in order to save $$$. That was squashed by the state, and everyone was silent about this! Now, a health care company in Utah is promoting this approach? It will be interesting what develops. We'll see.

Good, interesting article! Thank you for bringing it to my attention.

Keep Smiling and Stay Strong,

Carole :-D

Allen5280 profile image
Allen5280โ€ข in reply tocarolek572

I'm trying to smile, or hide when I can not.

Thank you carolek572

jimeka profile image
jimeka

How did your MRI go today? Blessings Jimeka ๐Ÿฆ‹

Allen5280 profile image
Allen5280โ€ข in reply tojimeka

Oh I survived it, it was not easy today by any means. Wouldn't ya know that 30min prior to my MRI I had a symptom flare start on. I didn't completly recognize it until I was pulling into the hospital parking lot. I have been on just one crutch for the past week. Sometimes it is a little hard and I think of the other but have not had to go there. When I was going into the hospital I really wished I had the second, bit I managed. Not very well... the technician ended up bringing the table you lie on in the MRI to me. Anyhow, just a few minutes into the MRI I had a excruciating muscle spasm in the back of my neck up in the my head and down it proceeded down through in my right shoulder blade too and it was just excruciating and I couldn't move. I knew if I moved it would have to start the whole ordeal all over. I always shut my eyes before going into the tube cause I'm a little claustraphobic. Well the spasms started down through my back into my legs and fighting to remain as still as possible. The technician, she knows my condition and my circumstance for I'm a MRI regular at my local hospital. She told me when she paused to bring me out to add my contrast stuff that I managed to not do to bad.... it was tough I mean really tough today. Throughout the entire procedure I'm thinking I need to squeeze the emergency stop thing in my hand and ask to be moved to the er. Once we got through it, i was able to stretch it put a little bit, but i was asked frequently if I was ok and if I did need to. I got through it ... the only thing 5hat got me through was prayer, I prayed through the whole thing and I got just enough strength to do just that cause once i was out of the tube my muscles in my legs back arms and neck just went spastic and I couldnt stay still for anything.so I'm grateful

jimeka profile image
jimekaโ€ข in reply toAllen5280

Thank the Lord you are home safe. You keep getting attacked but prayer wins every time. Stay strong, let us know your results. Blessings Jimeka ๐Ÿ™

Allen5280 profile image
Allen5280โ€ข in reply tojimeka

Home, exhausted, sore and tired. Even spasticity in my face. Just when I fight my way from 2 crutches to one, MS is trying to fight me on that one. Fighting a migraine as well, but I'm a little more comfortable. Home and medicated and its tolerable, not excruciating like it was. I came out of the hospital to an almost flat tire, so had to stop and air it up, get gas and remembered I was planning on the grocery store after my MRI. I have been putting it off with all the stuff that's been happening with my travel trailer house. Having electrical issues and been kind of roughing it the past few days. So.... I thought about just going 4heoughva drive through, but then I though, and feel worse off than I do now? So I went to the store quick, even the Walmart greeter asked me if i was ok, i said i was with the best smile i could muster. Pushing through the spasms starting in my face. I managed to keep telling myself, if I stop moving I might end up getting a ride back to the hospital via EMS. So I kept going, wasn't there long just enough to get a couple things to eat and now I'm considering opening a salad I got.

kdali profile image
kdaliโ€ข in reply toAllen5280

๐Ÿ˜ต I hope youโ€™re able to eat and rest tonight

Allen5280 profile image
Allen5280โ€ข in reply tokdali

Fed and medication will get back rep everyone tomo re eow

Kenu profile image
Kenuโ€ข in reply toAllen5280

Boy that sounds like a rough day ๐Ÿ˜–. Glad to hear you stuck it out and got most everything done ๐Ÿ‘. I canโ€™t hardly imagine how hard that MRI was ๐Ÿ˜ž. Extra prayers for you tonight ๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿพ Ken

Allen5280 profile image
Allen5280โ€ข in reply toKenu

Thank you Kenu

Im still pushing it, have had electrical issues. Not just the currents in me that fail sometimes. Finally got it worked out, I think. Cold weather is fixin to hit tomorrow and I'm so far behind, will just have to see what happens. It will be ok cause the only really pressing issue I have left is to fix my heated hose and some heat tape for my water filter and connection. I think I can get that taken care of before tomorrow night. Thank you for your prayers

Allen

jimeka profile image
jimekaโ€ข in reply toAllen5280

Hoping and praying that the medication click in and that you were able to rest and hopefully sleep. Praying that you are well enough to do groceries with one crutch today, if not rest up and regain your strength. Blessings Jimeka ๐Ÿ™

Allen5280 profile image
Allen5280โ€ข in reply tojimeka

I'm still pushing on, thank you jimeka

carolek572 profile image
carolek572CommunityAmbassador

Allen5280 You have showed so much strength and courage during all this. You could have, at any point, given up, but you didnโ€™t. It encourages me to keep on going, in the face of future obstacles, and to just โ€˜soldierโ€™ on. Thank you, and I will pray for you.

Carole

Allen5280 profile image
Allen5280โ€ข in reply tocarolek572

Thank you carolek572 , prayers are much appreciated. I'm not quite out of the red yet, close but it's in sight. I'm praying for all as well.

Allen

greaterexp profile image
greaterexp

I found that article really interesting, too.

Iโ€™m so grateful the MRI and this day are behind you. I pray tomorrow is better.

Allen5280 profile image
Allen5280โ€ข in reply togreaterexp

Thank you greaterexp

I'm hanging in and slowly getting back around.

sashaming1 profile image
sashaming1

I hope that things are going better for you!

Allen5280 profile image
Allen5280โ€ข in reply tosashaming1

Thank you sashaming1 , slowly things are getting g a bit easier

I found this article very interesting too. Sounds like you have a lot on your plate. I wish the best for you.

Allen5280 profile image
Allen5280โ€ข in reply toMS_Indestructible

Thank you MS_Indestructible , I am a bit overloaded but I can see the light at the end of the tunnel.

MS_Indestructible profile image
MS_Indestructibleโ€ข in reply toAllen5280

try not to get too overwhelmed . . . pessimist point of view "the light at the end of the tunnel is the light of an oncoming train" LOL sorry :(

Allen5280 profile image
Allen5280โ€ข in reply toMS_Indestructible

Or, it could be an optimistic point a view, for when I was stuck in that tube, I might has been relieved to realize the pain was soon going to be over by stepping into the wrong tunnel!!! Yes, it sucked that much! ๐Ÿ˜ฎ๐Ÿ™„

MS_Indestructible profile image
MS_Indestructibleโ€ข in reply toAllen5280

I hear ya!

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