25 Jun2023: G'day sisters and brothers... - My MSAA Community

My MSAA Community

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25 Jun2023

RoyceNewton profile image
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G'day sisters and brothers. I hope you are well today. Relax take it easy. YOU will be okay. My 20+ years of this illness says YOU are not going to die, YOU may walk funny but it is nothing that YOU can not cope with.

Relax take it easy. Disease-Modifying Therapy (DMT) is your friend. I recommend OCREVUS but I am not any type of Doctor lrt along your Doctor. So take it as a recommendation. Besides, why would YOU not take the strongest medicine available after all YOU have to live with this illness, nobody else, just YOU.

Anyway, have a nice day, smile some and exercise. YOU will do this, chin up and smile. This is your life, so why not live it.

Royce

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RoyceNewton
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bxrmom profile image
bxrmom

At my last appointment with my Neuro, she said that if Tecfidera stops working for me or if I need to come off of it for some reason, she recommends Ocrevaus for her patients. My veins are a hard stick sometimes (and my veins like to roll). My left arm is pretty much a no go after I was in the hospital with blood clot in 2007 because blood was always drawn from that arm (iv was in my right arm. Since then, nobody has been able to get blood out of it so not sure how and iv would do. But I know they can put them in other places which kind of freaks me out 🥺

RoyceNewton profile image
RoyceNewton in reply tobxrmom

My expert always uses a butterfly and the missus always over hydrates to plump the veins up beyond that needles scare me,

bxrmom profile image
bxrmom in reply toRoyceNewton

I always try to drink more water when I know I have to get bloodwork done or get injected with dye for mri's.

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