Assumptions I make: G'day family. I make... - My MSAA Community

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Assumptions I make

RoyceNewton profile image
10 Replies

G'day family. I make several assumptions based on my experience. If my assumptions are different to your reality please forgive me. Generally, it is better to fight as hard as you can against ms's relentless attacks upon your body. This is why I suggest taking the strongest Disease-Modifying Therapy that YOU can. I assume that YOU want to do everything that YOU can do to make life as bearable as YOU can. I assume that despite your absolute best effort that ms will eventually win and that YOU will lose. I am very sorry because that means I will lose one day.

The biggest assumption, YOU want to make that loss far far into your future. That if things go sideways today there is always tomorrow. Your will to carry on despite, whatever, never ceases. I assume that within YOU lives everything needed to survive end thrive with this illness. That YOU can, YOU will, YOU are not a weakling. That You are strong. I believe in YOU, now YOU get forward and believe in yourself.

Royce

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RoyceNewton profile image
RoyceNewton
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twooldcrows profile image
twooldcrows

this is how i feel and that all should try to keep fighting this disease for we can keep going on ...the meds slow it down so hopefully to keep you going with very little disability ...there are lots of people on here that have had it for many many years and are still going strong for they started the meds early at least that is how i feel that is why they are still going strong...all is your choice on what you want to do ....the meds do slow it down ....love and happiness to be able to keep fighting it ....

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

Yes, started day 1, hated the needles, but I wanted to keep myself as active as possibly so I sucked it up and stabbed myself. You di what you have to do to achieve a goal. 20+ years and I still walk.

twooldcrows profile image
twooldcrows in reply toRoyceNewton

yes i started with the needles also and then a pill and now Ocrevus and love it ...yes still walking ,tripping and falling but ha with age could still be having these problems but it is all just part of it and ageing i feel great ....love and happiness is filled with lots of laughter to cover up some bumps ..it makes others as ease when i can laugh at my boboes..the kids at times think i am a little nuts but that is what's great about life we make it for our selves as long as we are safe and all that are around us ...i like to relax at the beach in my toy that i ride in the dunes and i have gotten it stuck in places and found my way out of the how to find my way out without getting hurt even when i have tipped it on its side now that did scare me the last time for i was by myself but i got out and found someone to tip it over on to its tires ...i just have to laugh and go on my way....hahahahaha....next time need to make sure others seen what way i had gone but they knew it was only a short trail and was a dead end ...so life is wonderful and fun ...take care and enjoy your vacation filled with love and happiness and loads of fun...

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

Yes I did the needles, then tables and am going to look into ocrevus later. I have rolled my 3 wheel scooter in the street. Foolishly going up a gutter theat an angle. Panicked the poor lady who saw me but it was a good laugh. Will not do it again but it was funny. ms has given lots of adventures, lots and lots but I would not have it any other way.

Royce

twooldcrows profile image
twooldcrows in reply toRoyceNewton

i feel so much better and walking got so much better after being on it ...hope it works for you if you change over ....sounds like you do the adventures where ever you are ...are fun a good laugh and of course scary too but ha we are still living just like the old days just better actually ...doing what maybe wouldn't have done before ...it is great to have you back ...enjoying life ....love and happiness..

Amore55 profile image
Amore55

I’m glad that I took good meds early in my fight. I stopped all meds after 12 years for personal reasons. I don’t advocate for everyone to do that, but for me it was the right decision. I’m very happy that I had a great neurologist who guided me through those early years. I have no doubt that the meds are the reason why I am able to do all the things I can do today, especially when the doctors told me that I would not be able to do them. So, absolutely keep fighting every day of your life! I keep fighting for all of my strength and I keep using my muscles, because I want to keep walking and doing the things they said I wouldn’t do!

RoyceNewton profile image
RoyceNewton in reply toAmore55

Excellent attitude.

Tazmanian profile image
Tazmanian

Carry on

hairbrain4 profile image
hairbrain4

Don't ever let anyone say you won't be able to do something in the future unless it's God himself telling you. No human knows your future. Stay strong, be positive & always look forward. Diagnosed 18 years ago & I'm still walking.👍😅

RoyceNewton profile image
RoyceNewton in reply tohairbrain4

that is a fact

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