Somebody asked

[RoyceNewton]

G'day family, hope the day is going well and last night was restful. Looking out my office window I have blue skies and no wind. Kind of cool, but it is winter so no complaining.

Somebody asked about Tecfidera, but I lost the message. Entirely my fault and I am sorry. So a quick summary. Been on it for 15 or so years, and never any side effects. Easy to use and convenient. I would not recommend it due to low efficacy but if YOU hate needles like me it is a great option. I do not know but if there is a better pill I would think to take that first. In all honesty, I am going to try the twice-a-year infusion just to change the game and confuse my ms. I forgot, I have never had attacks that I know of. YES, I have had worsening of symptoms but no attacks.

Good luck with your choice, and be wise. This is a lifelong progressive illness, treat it like that and stay strong.

Royce

[NorasMom]

It is FREEZING here today after hitting 70 yesterday afternoon. But I got to see a Chinook first thing this morning AND have a very large hawk perched in the top of a tree at the edge of the yard. Life is good.

[RoyceNewton in reply to NorasMom]

Umm I think you are not talking about the large twin rotor helicopter, Emm type of salmon am I correct? If so very cool.

Royce

[NorasMom in reply to RoyceNewton]

Nope; it was the helicopter! I was peacefully drinking my coffee when there was so much noise coming from outside that I wondered if we were being invaded. Run out onto the back porch, and there's this massive chopper moving through the sky.

[RoyceNewton in reply to NorasMom]

2 engine large helicopters are fun as well

[NorasMom in reply to RoyceNewton]

They are, but I'd prefer the salmon!

[Cwright170994]

I started off on copaxone, but after a hospital stay due to 2 generalised seizures one night (not my normal simple partial ones), I got switched to the 6 monthly one. Its called ocrevus, and its a godsend 🙌❤️ sure, I have to have bloods taken 2 days before, and on the day I have a cannula put in, but the prednisolone they put through, and the antihistamines, are amazing! I had to start it in July 2021, and it's helped get me somewhat back to "normal". My mri I had in September didn't show any new lesions, and that's a year of being on it (4 lots)!

[RoyceNewton in reply to Cwright170994]

Thank you increases my thoughts on changing.

[mrsmike9]

I was on Tecfidera for several months, really early on. It made my white blood count drop scarily low so that didn't last long for me!

[Tazmanian]

After 7 DMT's I'm on ocrevus for several and love it

[Tazmanian in reply to Tazmanian]

Sorry I meant to write ' for several years '

[bxrmom]

I have been on Tecfidera, now the generic, for almost 5 years I believe. My white cell count has always been on the low side but will go back up, and then down again. My different neuros have always kept an eye on it. The last time I had blood work done, my neuro said if the numbers were low again, I would have to go every 3 months instead of 6 months to recheck...so next month I will be having blood work again instead of at my 6 month recheck. Hopefully my numbers are back up or I may have to take a break until my numbers rebound (which scares the crap out of me to not be on anything).