What does a relapse look like? - My MSAA Community

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What does a relapse look like?

Mollyabigail profile image
34 Replies

I need your opinions. Yesterday, 12/26 I sat a lot & wrote thank you notes & watched football.Then I felt guilty about sitting so much & forced myself to do 20 minutes on my recumbent bicycle.

This morning, my glands are swollen & my throat is sore. So much so, I am not going to work. Instead, I am scheduled to see an NP in a few hours for (hopefully) an injection of something strong.

I can hardly walk today. (Miss Independent had to have help getting out of the shower). Did I sit too much? Did I over do on the bicycle? Is it my sore throat & glands? Or is this a relapse? Many thanks!

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Mollyabigail profile image
Mollyabigail
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34 Replies
leking1 profile image
leking1

Hi Mollyabigail, I am sorry that you aren't feeling well this morning. This is my reaction- No, I don't think it a relapse. No, I don't think your symptoms are related to yesterday's activities. I am very glad that you have an appt. with a NP, because I suspect you may have a virus or possibly even strep throat. Please feel better, and keep us posted. Did you have a Flu shot this fall? Linda

Mollyabigail profile image
Mollyabigail in reply to leking1

Thank you, Linda. Yes, I had a flu shot.

Sandydemop profile image
Sandydemop

hi Molly, i agree with Linda. you did not cause a relapse. and can't cause a relapse! when I'm feeling sick it affects my walking. my immune system is down and that has an effect on my weakest parts. PS, a relapse has to last more than 24 hours. Please don't feel guilty for sitting and/or biking. that is a no win situation.

I also have a sore throat. it's going around. Please let us know how you are doing.

Mollyabigail profile image
Mollyabigail in reply to Sandydemop

Thank you, Sandy. Just got an Rx for antibiotics. I don't know what a relapse looks like. What a good problem to have, right? You feel better too!

Sandydemop profile image
Sandydemop in reply to Mollyabigail

in my experience and that is small, i only had two relapses. both had to do with sudden vision changes. the treatment was cortisone/steroids. mostly i believe i don't have a lot of relapses due to being on disease modifying therapy. i've just seen a slow progression which can be something to be grateful for.

mm1527mm profile image
mm1527mm

Sorry to hear. Glad you are seeing np. Does not sound like relapse to me. Sounds like you are sick with some sort of cold, virus etc

Mollyabigail profile image
Mollyabigail

Thank you, mm1527. I need the wisdom of this group. Thanks.

Mollyabigail profile image
Mollyabigail

I have COVID. Kind of relieved to know what is wrong. Love & good health to all of you! Thank you!

BettysMom profile image
BettysMom in reply to Mollyabigail

Are you going to get treatment for Covid? Antibiotics treat bacterial infections, not viruses like Covid.

Mollyabigail profile image
Mollyabigail in reply to BettysMom

Yes. I am going back to be tested by a medical pro Wednesday morning. I learned about the COVID through 2 home tests kits. (both were positive). You would think they would have tested me Tuesday. But they did not. Rural medical care leaves a lot to be desired.

erash profile image
erash in reply to Mollyabigail

the treatment for covid, paxlovid needs to be started within five days of onset of symptoms

BettysMom profile image
BettysMom

Yes, you should have been tested for Covid. Sore throat is a very prominent symptom of the Omicron virus infection.

Mollyabigail profile image
Mollyabigail in reply to BettysMom

Thank you, BettysMom.

leking1 profile image
leking1

I am so sorry that you have Covid, but I am glad that it was found early. Get well soon. Linda

Mollyabigail profile image
Mollyabigail in reply to leking1

Thank you so much.

Kenu profile image
Kenu

Like Erash said start paxlovid, that’s what they gave me last time and cleared up in couple days 🤞🏼 Good luck hope it works out 🙏😉

Mollyabigail profile image
Mollyabigail in reply to Kenu

Thank you, Kenu.

MarkUpnorth profile image
MarkUpnorth

Dr Not Agrees. You are coming down with something. If you have M.S., when you come down with , or are coming down with something, it's kind of like computer overload, not a relapse. But if you want to think of it that way, go ahead. There are no rules in this game? But when you have M.S. as long as someone like myself, you get to believe in patterns of inconvenience, like I can't walk straight again today because....

Mollyabigail profile image
Mollyabigail in reply to MarkUpnorth

Thank you, Mark. For two years now, I have been blessed with fairly good health despite the M. S., & it just scared me when suddenly I couldn't walk or stand at all.

1) sounds like you overdid it with the bike. Trust me do it to myself all the time. 2) I think you have a virus brewing, and that would contribute to the sore throat/swollen glands. 3) the combination of both together affected you for the shower making the shower probably way too much right now.

Hopefully you’ll start to feel better. Ibuprofen usually helps me.

Mollyabigail profile image
Mollyabigail in reply to Goldilockssearching

Thank you so much, Goldilocks. Did you know a. Rx of Paxlovid is FREE in the U. S. ? Will take some Ibuprofen too.

Goldilockssearching profile image
Goldilockssearching in reply to Mollyabigail

yes I took it this summer when I had Covid. I went back and read the comments and saw that. unfortunately is what you’re dealing with.

Take care & drink a ton of fluids.

lbenmaor profile image
lbenmaor

I'm so sorry to hear this is happening to you.

I am praying you feel better!

Leslie

Mollyabigail profile image
Mollyabigail in reply to lbenmaor

Thank you, Leslie. I appreciate that so much.

lbenmaor profile image
lbenmaor in reply to Mollyabigail

You're Welcome.

Jer29-11 profile image
Jer29-11

So sorry! Hope you’re feeling better soon. My neuro always tells me that sickness can exacerbate past MS symptoms. I guess from your immune system working in overdrive, inflammation and possible fever. When I get sick, the right side of my body feels weak (where I’ve had MS issues before). Take it easy and get some rest!

Mollyabigail profile image
Mollyabigail in reply to Jer29-11

Thank you, Jer29. I am trying to rest.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi Mollyabigail lm so sorry that your so sick! Please get plenty of rest!

When your up for it, here is some info on Relapses, you can read it there or even order a copy for home! mymsaa.org/publications/ms-...

Feel better soon! 🤗💕🌠

Mollyabigail profile image
Mollyabigail in reply to Jesmcd2

Thank you, Jesmcd. Oooh, written by Dr. Boster. I love that guy. Going to read it now.

CrazyCatWom profile image
CrazyCatWom

Relpses: suddenly going blind in one eye (Optic neuritis), developing virtigo . . . in only one eye. Having som part of you body go numb, or numb and tingly. You can't take a step because your leg locked up. Or, my favorite: you drop your chin to your chest and feel like someone pressed a tuning fork to your tailbone! Those are some of the many, man, many MS relapses. I was unable to see a neurologist for some 23 years after my diagnosis, so I had to run everybody wierdness through a little serious trial: HOW LONG HAVE I BEEN EXPERIENCING THIS WIERDNESS? A few days, but then it went away, or has it been a few weeks? Likely MS wierdness. Your symptoms sound more like a bug, flu, etc.. 20 inches of exercise might make muscles and joints hurt, but not MS. Now if you'd fallen over when you got off the equipment because your balance went suddenly AWOL and it hasn't gotten better for several weeks (6 to 12, in general), you may be experiencing a relapse.

Something I started doing with my new neurologist, (and now all my providers) I got a spiral notebook (like we had in school). I started writing down any health issue/symptom with the date, intensity, and any other things of note about it. And when I go to my provider, I take the notebook with me, open it up in front of the provider, so I can remember and talk to her/him about it with details. It has been very helpful! So much so my previous, neurologist would come over, grab my notebook and start going down all the items, and make sure all were discussed!

Mollyabigail profile image
Mollyabigail in reply to CrazyCatWom

Thank you for your insight, CrazyCatWom!

kdali profile image
kdali

I see you are sick, but I'll throw in my relapse call rules since this is a common question here and some MD's have different rules or some don't call when they should (guilty).

Loss of function (vision, extremity, bowel/bladder) is probably a trip to ED but my office might do in home IV steroids now, I hope never to find out. Anything new or old but worse, lasting more than 24hrs is an office call or email to work out what's needed.

Mollyabigail profile image
Mollyabigail in reply to kdali

I will keep that in mind. Thank you, Kdali.

kdali profile image
kdali in reply to Mollyabigail

You're welcome! Btw, no one told me what my rules were before I had a relapse 🙄 so when I was having one, the nurse fussed at me for not following rules I did not know about 😵‍💫

Or maybe they did tell me, but I have MS so that info didn't stick 🫣🤷‍♀️ Anyway, it's good to ask and maybe write down what you're suppose to call about.

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