Vitamin D @ 81

[JSSimp]

My Vitamin D Level usually range from 80-90. I take 50,000u Wkly . My doctor says the range is Ok over the last 2yrs. Just wondering does anyone have a level close to this. Also thinking about the longterm effects of such high levels. Thanks!

[Jesmcd2 CommunityAmbassador]

Hi JSSimp how are you this morning? 🙂 Here is an article from Healthline about Vit D healthline.com/nutrition/ho...

I stopped taking Vit D 2 yrs ago, turns out my body makes an excessive amounts of it... anymore and it will become toxic...

Listen to your dr tho!! 🤗💕🌠

[JSSimp in reply to Jesmcd2]

Ok. I will read the article. Thank you🙏🏾

[Sandydemop in reply to Jesmcd2]

hi Jes, how did you find out you make excessive amounts and isn't there a difference between D2 and D3?

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

Opps my bad.. stopped the vit d3... 🙂 had to get kidneys checked😐 wasnt taking it, but it was still on med list. So she started telling me to stop taking it right away🤔. Had to explain l hadnt been taking it for like a yr... I was in the high 60s , with a standard range of 29.99... but thats thru the kidney foundatiion... 🤗💕🌠

[JSSimp in reply to Jesmcd2]

Hello Jesmcd2, I’m doing well this morning and I hope the same for you. Thanks for the article and so will be in discussion with my doctor. Thanks for you concern and feedback🙏🏾

[kdali]

The goal for me is 60, and I stay 50-70. For me, that's not a high level, my labs are fine. It's also not a problem with vascular disease, supposedly, because my supplement contains vitamin K and I visit a float tank for magnesium weekly.

[JSSimp]

Ok. Thank You🙏🏾

[Turtlepie]

I don't know what my vitamin d level is but my neurologist has me on 50,000u of vitamin d2 once a week and said he will keep me on this all winter a reasses this in the spring. I am also doing vitamin b12 shots once a month. And he said that he night change that in the spring as well. I don't know what to think about it but and information about it will be appreciated.I hope that your levels star good for you and that for both our sakes that this 50,000u is not a problem. Prayers that all will be alright

[JSSimp in reply to Turtlepie]

Ok. Thanks for the info. I have been on same dose for awhile now and just wanted to get everyone else input. Don’t want to suffer from longterm effects or toxicity🙏🏾

[Sandydemop]

wishing you well. there must be a way to test for toxicity. Isn't there a blood test?

[JSSimp in reply to Sandydemop]

Thanks. I usually get labs drawn every 3-6mths so it will tell. In the event just wanted to know some other ppl level to compare. After reading everything about the range it varies. Thanks🙏🏾

[Sandydemop in reply to JSSimp]

when mine went up to 96 my dr. told me to stop taking it. she wants me more around 40 but functional medicine docs say around 90 so i don't know what the right amount is either.

[JSSimp in reply to Sandydemop]

I know back and forth with what PCP, Neurologist and different studies can be confusion. Awaiting for my Neurologist response. Thanks for your input🙏🏾

[Sandydemop in reply to JSSimp]

hi JS, wishing you all the best. please share what you find out.

[JSSimp in reply to Sandydemop]

Ok. I will. Thanks🙏🏾

[erash in reply to Sandydemop]

Neuro nurse practitioner wanted mine higher than 50s. Upped me to 7000IUs D3. Level jumped to 90. I was uncomfortable with this # and decreased back to 5k. 6 mos later still 90. Glad I decreased. Toxicity can start ? > 110. Watch for kidney stones, muscle aches, etc.

[JSSimp in reply to erash]

One of my concerns with Kidney Stones could develop with high levels. Thanks🙏🏾

[Sandydemop]

one more thing. Does anyone know the difference between D2 and D3?

[erash in reply to Sandydemop]

I believe d2 converted to d3 by body…or is it the opposite? I forgot..

Will research and get back to u😊

[erash in reply to erash]

here healthline.com/nutrition/vi...

[JSSimp in reply to erash]

Thanks🙏🏾

[Sandydemop in reply to erash]

thanks e, great article.

[JSSimp in reply to erash]

Thanks🙏🏾

[BettysMom]

Medicare refused to pay for my Vit D level testing. The lab charged me about $650 which I still have not completely paid off.

[JSSimp in reply to BettysMom]

Wow !!!! That’s a lot.

[grammyshay in reply to BettysMom]

I struggle to stay at around 30 and Neuro keeps testing me because of difficiency. I am afraid that the hospital is going to pop me for this also.

[JSSimp in reply to grammyshay]

Do you notice a change with your body at 30. Thanks🙏🏾

[grammyshay in reply to JSSimp]

I have progressed so much in the last 5 years. I never paid attention to my levels until recently. Doctors did, but I did not. I just know how I feel now, which is horrible.

[JSSimp in reply to grammyshay]

Understand. I hope you start to feel better and thanks again for your reply🙏🏾

[grammyshay in reply to BettysMom]

Check with your hospital billing department to see if they can help. My hospital did. I am VitaminD deficient.

[BlanketTime1]

i don't think i'd worry too much about your high dosage. it's actually dangerous for you not to take what you need. i was diagnosed with extremely low vitamin d. i've taken 14, 00 per week for the past 3 years and much more for 4 years before that. here's the thing. whatever you body can't use, you excrete, so no worries.

even though i took antidepressants, when my levels were super low, my pain was worse (i'm talking from 6 to a level 9 every day, ALL day), i was depressed, i had no energy. i mean playing with my hyper cat for 10 minutes was too much for me.

the good news is this is an issue that requires a vitamin, not another drug with horrible side effects. my mum is nearly twice my age. she takes 4 meds, 2 for blood pressure and cholesterol. i take 7 meds and 4 of them come with those long pamphlets that being, "you may be afraid to take such a strong medication, but your doctor feels the benefit to you far outweighs the risks." smh

and in a couple of weeks, you'll feel worlds better.🤗

[JSSimp in reply to BlanketTime1]

Thank You and I will look at all factors. Hope you feel better🙏🏾

[ahrogers]

Dr Giovannoni posted about ECTREMIS conference presentations. One was a study looking at giving vit D to people with CIS to see is would prevent new lesions. The people did not receive a DMT only vit D supplements in different amounts. It didn't help. His take away was vit D is still important for bone health and other health but not for MS. My neurologists have never wanted me to have high levels. My last level was 30 which is the low end of normal.

I hope this link works, I tried to copy and paste from his email to the vit D study

substack.com/redirect/916c9...

[ahrogers in reply to ahrogers]

I just tried the link and it takes you to the list of all the abstracts presented at the conference. The vit D study is there a little way down the list

[JSSimp in reply to ahrogers]

Thanks for the info🙏🏾

[JSSimp in reply to ahrogers]

Very good information. Thanks for sharing🙏🏾

[grammyshay]

I struggle to stay above 30. This is with 50,000 ui. Years ago I was on injections of vitamin d. Was constipated for a year. I don't know my numbers when I was receiving injections.

[JSSimp in reply to grammyshay]

Oh My!! At one point I was at 13 and I notice something was wrong and was diagnosed with MS at the same x. I’m not having a problem with the level or side effects. Just trying to get everyone thoughts on it. I’m thinking also if it isn’t broken don’t fix it. Enough issues going on with other things after thinking over the days. Thanks🙏🏾

[palomino27 in reply to grammyshay]

Try powdered capsules. The gel caps are not absorbed by certain people. I can take a hundred gel capsules and my level goes no where. Injections don't last for me either. Pure encapsulations and Solgar make powdered capsules.

[grammyshay in reply to palomino27]

Thank you so much. I will check them out!

[grammyshay]

I was dx'd in 1998. In the last 5 years I have progressed to the point that I am scared. I switched Neurologists in May. I have a good one now. In May my Vitamin d was 22.

[palomino27]

80-90 is perfect. I've had mine above 200 before for short periods. The side effect of being to high for too long might be kidney stones. The side effects of to low vitamin D3, at least for me is an MS attack. Sub-40 for me is an automatic MS attack. I test every 8 weeks to be sure.ive tested like that for 7 years now. For my MS, the range should be 60-130. I argue with my doctor about this all the time. The current range of 30-100, I believe,is to low for anyone.

[JSSimp in reply to palomino27]

Ok. Thanks you for the information. Definitely don’t want to have an attack🙏🏾

[irishdiva1115]

I take 10,000 IU a day and I cannot get my numbers above 24 which is in the red. You have great vitamin d levels I have heard taken too much vitamin d is not good for you though.

[JSSimp]

Ok. Praying your number comes up. I did speak with my Neurologist and he mention to continue dose because the level is good. So I proceed with the 50,000u as prescribed and just continue to monitor for changes.

Do you experience any problems with the level that low?