“how she feels about her diagnosis, readily admitting that it ticks her off. “Acceptance? No. I’m never going to accept this. I’m pissed," she said.”
I think you have to accept it but you can most certainly be pissed - you have no control and you can’t decide when a bad or good day is coming; you just take it day by day moment by moment 😬apple.news/AxLkLeitTS3Oa7eC...
I should note the article doesn’t exactly go into anything other than she recognizes some of the symptoms earlier in hindsight as I’m sure we all do. 🙃
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JMWCO
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i agree with her about how we feel sometimes...the more that come out that they have this monster it will help all of us for others to hear about it and how it changes our lives....great post thank you ...
I heard the words “you most likely have ms” as I found out in a Sunday before my dr called me…I was already trying to process what that meant.
I don’t think anyone is prepared for hearing a diagnosis that has no cure. We have it beat into us that there must be an answer or solution that when there truly isn’t and just try to live your best life it’s harder than expected- if that makes sense.
He gave me info on the options at the time...not many in 2006. Got online and started looking up what I could. Had 10 days to decide which med I wanted to start on.
Yeah, I was given a large stack of medical drug packets to read over (like normal people know what ½ this means) aside from the warnings in laymen's terms it was frequency and how it was administered. It felt like how are you supposed to know what to choose when you are just trying to understand what does this mean for my life today and the rest time.
I think treatments are like vaccines - they prevent things from getting potentially worse but nothing is guaranteed to make it 'better.'
I think that's one of the core struggles with MS - there are drugs/things you can do to make your personal situation better/comfortable but it doesn't mean you're going to be healed or the way you were like taking medication for the common cold or flu.
I think we have it engrained in our society that there is a magic pill/drug/habit that will "fix" whatever ails us; which is not the case.
Yes, I agree with your vaccine analogy...just preventing the flu or hoping when you get it, that it doesn't kill you, plus the vaccine is not very effective for some people. Sounds about right 🤣
Magic health nonsense has been an influence since I got here (to earth, not to this group).
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