what to do?: My Neurologist has not put on... - My MSAA Community

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what to do?

Arroyo1115 profile image
16 Replies

My Neurologist has not put on any MS meds,because I have been allergic to everything . He is sending me to a Neurologist that specializes in MS. I hope he can find something for me, I have been doing well this far. I do not want to go backwards. Worrying! 😔

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Arroyo1115 profile image
Arroyo1115
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16 Replies
Kenu profile image
Kenu

mS specialist is the way to go👍🏼 There are a lot of options available now. Good luck 👍🏼 😉🙏

Sandydemop profile image
Sandydemop

Like Ken said. Lots of options. hopefully your new doc will speak to your old doc or at least get your records.

agapepilgrim profile image
agapepilgrim

I was allergic to all of them, also. I don’t take any MS meds- just meds to treat the symptoms and strict diet and healthy lifestyle.

Koalagreen profile image
Koalagreen

alérgic of all?

MarkUpnorth profile image
MarkUpnorth

What agapepilgrim said,I was allergic to all of them, also. I don’t take any MS meds- just meds to treat the symptoms and strict diet and healthy lifestyle. My last relapse has been over 6 years ago, and my M.S. Specialist Neurologist, told me he believes I'm done with relapses, after decades of M.S. Avoid all processed foods with ingredients that aren't natural at all costs, then you diet will be perfect. That however eliminates, nearly every can, box, or other prepackaged food. Sorry. But your choice. I spent over 2 years with flue-like symptoms from DMT's, and all the other side effect drugs. Now I'm on zero drugs, except for CBD from hemp. Oh, I did use a steroid hand cream for areas of my hand that got inflamed from hand sanitizer use over time. Now now more hand sanitizers, no more steroid hand cream.

Arroyo1115 profile image
Arroyo1115 in reply to MarkUpnorth

Thank you for the information. I will definitely change my eating habits. I run everyday 6 mikes or more so I try to stay active. I hope everything continues to go well for you. 😊

JTZES profile image
JTZES

It sounds like you might need too an allergy Doctor. He would tell you everything you're allergic to.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

hi and welcome Arroyo1115 You definitely want an MS neuro! Hopefully they will figure things out for you! There really are alot of new and old MS meds out there that might work for you! Try not to worry! 🤗

Just for your info on the different kinds of meds, check this out... mymsaa.org/ms-information/t...

Hang in there! 🤗💕🌠👻

smidtsteeldog22 profile image
smidtsteeldog22 in reply to Jesmcd2

I also need to see neuro/MS specialist in Northwest Florida or South Alabama BUT with no major traveling required!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to smidtsteeldog22

Hi smidtsteeldog22 call MSAA Toll-Free Helpline  (800) 532-7667 they can help you out with some numbers! 🙂🤗💕🌠🎃

Mollyabigail profile image
Mollyabigail

Go to the MS neurologist! I would love to utilize one, but there are none in my rural area. Good luck! 🙏

lbenmaor profile image
lbenmaor

It sounds like you're in good hands having an MS specialist

as your new Dr!

Leslie

sashaming1 profile image
sashaming1

Sounds like a plan.

Tazmanian profile image
Tazmanian

good luck

twooldcrows profile image
twooldcrows

the specialist do a much better doctor for they know so much more about the disease....good luck that they can help ....love and happiness..

BlanketTime1 profile image
BlanketTime1

i'm glad the current neuro isn't too arrogant to refer you. that's wonderful and i hope the new one can find a med that's safe and effective for you.

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