Please Know...: We are trying our best all... - My MSAA Community

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Please Know...

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’19 Replies

We are trying our best all day long! Somedays are harder than others, but we are trying!

What on the list do You push through? For me on this list is the fog, I cant keep a thought to save my life! This post started as something else 4xs😐

Always Try Your Best! πŸ€—πŸ’•πŸŒ 

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Jesmcd2 profile image
Jesmcd2
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19 Replies
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Sandydemop profile image
Sandydemop

thanks Jes, I am pushing through decluttering. Getting rid of clothes that will probably never fit me again. decluttering papers that seem to multiply by themselves overnight.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Sandydemop

I have a file like that😟 Biggest problem, its full of MSAA books and MRI copies! πŸ€£πŸ˜‚πŸ€£

leking1 profile image
leking1 in reply to Jesmcd2

Good Morning, Jes! Your post made me stop in my tracks( it wasn't a screeching stop!) but I realized for perhaps the first time in my 74 years, that I have PUSHED myself my whole life! I couldn't even wait to be born..I came 6 weeks early, my Mom said, a screaming and ornery baby that wanted everything, and was satisfied with nothing! I pushed myself in school to earn good grades, and I did, I pushed myself to join all the right clubs and organizations. I married the wrong man, because all my friends were getting married. I raised my son as a single Mom, pushing myself to do EVERYTHING right: his school, his home, his clothes, his books and toys, his playtime and friends. Fortunately, he has the soul of a rebel, and grew up to be himself, but he did get that College degree, whether he wantedit or not! I have pushed myself at work for nearly 40 years, successfully, although it nearly killed me, and at home to keep it spotless and to keep my yard and gardens spectacular. I had to retire at 59, due to my MS getting so bad I could no longer function at work, or at home, if the truth be known. I think I am DONE with the PUSHING, as it it time to be just ME. Yes, my floors need cleaning, and the gardens need weeding and probably mulching, but that isn't going to happen today. I have to take 300 mg of Modafinil just to get up and stay awake for a few hours..I'm going to do whatever I want to do and NOT push myself to do anything! Jes, you should feel very good about yourself that you can come up with these posts with pertinent information for our foggy MS brains, and actually MAKE us THINK! That is awesome! Linda

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to leking1

Its a hard life trying to live up to those expectations, wether they are yours or ones the are placed on you.

But be Proud of what YOU have done! Of all YOU accomplished! Its not easy, I know. But YOU did it! πŸ€—

So If you want to do nothing my friend, Push back the recliner, and do nothing!

πŸ€—πŸ’•πŸŒ 

erash profile image
erash

some days it's the entire list...πŸ€•

falalalala profile image
falalalala

Fatigue.

Kit10 profile image
Kit10

From your list - fear.

Also desperation, grief, frustration, despair, and paperwork.πŸ§ΎπŸ§ΎπŸ“„πŸ“„πŸ“„πŸ“„βœ‰οΈπŸ“‹πŸ“©πŸ“¨πŸ“§πŸ“§πŸ“§βœ‰οΈπŸ§ΎπŸ“‘πŸ“„πŸ“„πŸ“„πŸ“’πŸ“’πŸ““πŸ“„πŸ“„πŸ“„πŸ“„πŸ“„πŸ“„πŸ“„πŸ“„πŸ˜¬πŸ˜¬πŸ˜•πŸ˜¦πŸ₯Ίβ˜ΉοΈπŸ˜’πŸ˜±πŸ˜­πŸ˜©πŸ˜§πŸ˜±πŸ˜±πŸ“„πŸ“„πŸ“„πŸ“„πŸ“„πŸ“„πŸ“„

Peruzzot profile image
Peruzzot in reply to Kit10

I'll agree on the frustration and paperwork.

Peruzzot profile image
Peruzzot

Fatigue and fog

Morllyn profile image
Morllyn

Yep, just try, and if you cannot quite make it today, there is always tomorrow! But keep trying.❀️

whwiechm profile image
whwiechm

One of the worst parts of MS is trying to do something that was very easy to do once upon a time. It is frustrating to need to plan out every movement to get the job done that would have taken me 5 minutes to do 10 years ago.

Cutefreckles72 profile image
Cutefreckles72

It's fatigue and pain. But I keep pushing.

jimeka profile image
jimeka

All but the insomnia, I take my night time cocktail of medication and I am out with the fairies 😴

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to jimeka

Me too! πŸ€£πŸŽƒπŸ€—πŸ’•πŸŒ πŸ«

twooldcrows profile image
twooldcrows

i agree with your list and at times is even longer....on we go....haahhahahahhah

carolek572 profile image
carolek572CommunityAmbassador

You are very pushy, Jesmcd2 ! Just teasing. Just don’t push yourself too hard! :-D

agapepilgrim profile image
agapepilgrim

the first are my major symptoms. But, brain foggy fugue, no memory, stupid words, bad decisions, childish responses that I don’t mean and craazzyy substitute words! Like, the other day I called a jigger a chigger. And contacts came out diddles. My daughter and grandson always know what I’m mean, but my 86 yr old husband is clueless. I guess on deeper thinking, it’s the major fatigue that limits my ability to even wash dishes. And when I push myself and active anyway, I suffer with trigger points leg cramps and muscle spasms in my upper back. BUT, I thank God almost every day that I can still take care of personal needs.

pamgarner profile image
pamgarner

doing the best I can!

BlanketTime1 profile image
BlanketTime1

if only the able-bodied folk knew this! i push through pain. when the pain clinic offered me oxycodone i said nope! i don't want to be fully medicated b/c if i took what i needed to kill all the pain i'd be a zombie.πŸ˜† i want just enough to push it back to a manageable level so i can take care of my fur babies and be present.

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