Have you ever noticed ?

[kwhompus]

Have you ever noticed that not all advice is good advice? Some advice has dark undertones or make you feel isolated and sad. I mean ,come on, who wants to be constantly reminded of our state of being in a negative way. Sometimes ,the advice we give is best meant only for ourselves. What I'm trying to say is, we must be careful less we send people on the edge in a slide

[Kenu]

Totally agree 👍😉🐾🐾 Ken

[CalfeeChick CommunityAmbassador]

Especially for those of us that are just beginning their MS journey. I know I spent days and nights searching for information. I learned to use common sense when reading all the information. HealthUnlocked and MSAA are the best! So much available information especially On MSAA 👍😊

[mm1527mm in reply to CalfeeChick]

I agree, diagnosed over 2 years and I sometimes still feel I was just diagnosed some days are better than others

[CV97 in reply to CalfeeChick]

Exactly! I need reputable sources I can read and take in on my own time! There is so much to learn and finding good resources through all the muck is half the battle. Keeping up with all the changes (materials, research, best practices, meds) is the other half!

[Sweetheartonvdayl]

Hi kwhompus 😊Most definitely , agree!

🙏Lisa💓💕

[anaishunter]

good point. It's always important to put yourself in the shoes of the receiver when pressing the "Send" button. However, nobody is perfect so there will always be slippage.

[BlanketTime1]

that's the worst, going to someone when you're afraid and they do more damage than good. it's hard for me to reach out to people in the first place as my role in my family is to take care of everyone else's needs.

[goatgal]

Though advice from individuals is well-meaning, it's best to find information from reputable sites like MSAA or NMSS. The MS family encompasses newly diagnosed as well as those who were diagnosed decades previously, each of us at a different point on our MS journey. We should indeed be careful with our words. And sparing with advice!

[leking1]

Well said by all! Especially with something like MS, which affects each person very differently.

[falalalala]

Agreed.

[JTZES]

I probably fit that bill. I'm pretty straight forward when I post a response to someone who is asking a question when they are newly diagnosed.My goal is to put them on the right track in getting them on the right track to move forward.

I apologize to anyone I may have offended over the years. I'm Sorry to all.

[kwhompus in reply to JTZES]

Your advice has always been on point and used sparingly. You have no need to apologize to me. Please continue in good spirit.

[JTZES]

My apology was just not for you but anyone that reads your post. I wanted to get it out to everyone.Thanks for bringing it to my attention.

[kdali]

Can I start leaving a “TOOT TOOT” in the comments now when I see the negativity train rolling though? 🤔

[falalalala in reply to kdali]

A toot toot?

🤣🤣🤣

[kwhompus in reply to kdali]

please oh please do !

[kdali in reply to kwhompus]

🤣🤣🤣

[Amore55]

Agreed! So happy to read your post !

[NovaGoose]

My wife works at the local hospital. As soon as the medical record was available from my first mri ordered due to optic neuritis she printed it out and took it to their best neurologist.

Of course he did not give her a diagnosis, but said: it is either MS or NMO and to tell me whatever I do "NOT TO START GOOGLING FOR ANSWERS"! That he would write me a recommendation to one of the best Neurologist Doctors that specializes in MS at an MS designated facility

Guess what the very first thing I did was?

Yep, started googling. There is so much disinformation out there. He was correct.

[jackiesj]

Yip, i too apologize if any words went out unintended....