Maybe MS Please give oppinion am worried - My MSAA Community

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Maybe MS Please give oppinion am worried

jmurph8111 profile image
12 Replies

Hi Everyone, im 26 and for over a year now I have had issues walking where my knees or just legs not entirely sure completely give out but i can always catch myself at the last second from falling. Just recently in a month in a half i started having what felt night terrors in that is was a terrible experience falling asleep and just tightness in my chest. I thought it could be a stroke or even bells pausly as one side of my face was unable to move and still sorta is, but then my left lip would start twitching. A day or so later at night i noticed contractions in my leg muscles, the day after I went to the hospital and they found nothing wrong with me. But I started having muscle contractions that would pull my right leg up and my body forward and then shortly after my fingers started to twitch alot. Now its progressed where I have all these symptoms still but now my hand's tremor nonstop and go numb when sleeping sometimes as well and I have pain in my hands and if I for example try and flex my arm for more than two seconds my arm just goes crazy unstable and just spasms. If I were to simply describe what it feels like I feel like my muscles over react and are unstable. I just had my first child 2 weeks ago and ive just been depressed and worried and I just worry ill never go back to normal. I worry i wont be able to walk or use my hands as I work online and if I cant type I cant make money to suport my family. I go to the neurologist in two days and hopefully, I can find some answers but honestly it may be hard without insurance to go all in on testing and in thailand the healthcare isnt really too good.

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jmurph8111
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12 Replies
kdali profile image
kdali

That's very worrisome and I'm sorry you have been dealing with this on top of pregnancy and now a newborn. Usually MS symptoms decrease or disappear entirely during pregnancy. I'm glad to know you have a neurologist appointment soon, as they are the only ones who can begin sorting out what the issue could be.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi jmurph8111 congrats on your new baby!🙂 I am sorry your having so many problems though. Im sure its frustrating! And stressful... Which does no one any good 😊

Try to relax and wait to see what your neuro says! Hes probably going to have you get an MRI first. Then take it from there!

Hang in there my friend! 🤗💕🌠

ahrogers profile image
ahrogers

sounds like you are having some tough symptoms to deal with. Unfortunately they can be symptoms of many different things. Glad you are getting in with a neurologist. They will do an exam to help narrow down a diagnosis but further testing will be required including an MRI. Keep us posted on what the neurologist says.

Praying you find an answer soon 🙏

JSSimp profile image
JSSimp

Praying everything will go well🙏🏾

Robsmom profile image
Robsmom

Congratulations on the new baby and I hope all goes well for you. Unfortunately although MS symptoms disappear during pregnancy the come right back after childbirth. If you don't have heath insurance there's an organization called MSAA that will pay for an MRI if you need one. Hope this helps.

sashaming1 profile image
sashaming1

Your neurologist may be able to perform some testing to see what is the issue.

twooldcrows profile image
twooldcrows

so sorry all of this is going on and you have a new baby ...CONGRATUALTIONS .on your baby ...hope the doctor is able to help and tell you who can help you with all of this ....love and happiness ....lots of laughter can help give you some relieve until you see the doctor and of course just to relax ...enjoy your baby ...stress is no good ....take care and hope all will be given you all the answers when you go to the doctor .....

152114randal profile image
152114randal

I suspect that your symptoms will abate soon especially if you have MS. My wife was diagnosed 23 years ago and still walking and that was before the meds that are available today.

Lucymommy profile image
Lucymommy

congratulations for your kid!! You need to go visit a neurologist....

Tazmanian profile image
Tazmanian

congratulations on the new baby and I hope you get some answers soon

bxrmom profile image
bxrmom

That's good that you have an appointment soon. Hopefully they will be able to give you some answers and help you out. Please keep us updated when you can.

BlanketTime1 profile image
BlanketTime1

first i want to offer you a 🤗. i'm sorry this has been so hard on you. i'm glad you've seen the neurologist. i hope they give you some answers. and congrats on the baby!

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