MS hugs

[5babymama]

Anyone just get their “hugs” at night?

[Jesmcd2 CommunityAmbassador]

Hi 5babymama welcome to the nut house!😊 I have gotten the dreaded MS hug.. usually for me tho it's when I go from warm to bitter cold. It doesn't help I live in NY State either. 🙃 Have you talked to your Neuro about it? I know there are others here that get the hug also... 🤗💕🌠

[greaterexp]

During my last relapse, I always experienced the MS hug most at bedtime.

[BlanketTime1]

i've noticed most of my symptoms are worse at the end of the day. i'm not sure if it's cumulative fatigue or what.

[wolfmom21fl in reply to BlanketTime1]

i think thats part of it BT.. I get more spasms and other symptoms like headaches and eye pain the later it is in the day. Not that I never have symptoms during the day.. I wake up with them sometimes but they are generally worst/more later in the day

[BlanketTime1 in reply to wolfmom21fl]

right? when i awaken each day, i have to get up first and see what works before i know how i feel. 😀

[mrsmike9]

I've been fortunate and over the years have only had 2. As I recall they were at night!

[wolfmom21fl]

unfortunately i get these randomly at different times of the day and night. I use some CBD lotion and then place the TENS unit on the rib cage to help ease the spasms.. sometimes it takes a while and i need to move the pads around a bit but it generally helps ease them. I also have to stretch the rib cage muscles out as well. I stand next to a wall and "walk" my fingers slowly up the wall until i feel the rib muscles start to stretch.. If I can go further, I do.. sometimes I cannot.. I will do this a few times then rest.. The thing i have found with any spasm is you have to engage the muscle in spasm in order to get the spasm to release.. so thats the purpose of the finger walking..

[SarahW78]

Hey! I’m new here! I’m Sarah. I stumbled upon this group and I’ve already learned so much from reading through some things. I don’t feel so crazy! Haha I am currently undiagnosed but that’s mostly due to no insurance and I can’t afford an MRI without it, so I’m working on that. Lots of MS symptoms on and off for years now. Each time gets a little worse. I work with a functional neurologist and he’s been great. 5babymama My hugs seem to happen kind of whenever. 🤷🏼‍♀️ I woke up with one the other day. Just mild, then as I got up and moving it seemed to hug me more- so sweet. 🥴 Question: does anyone have like a cranking type of pain with theirs? I have to walk half bent sometimes due to the pain.

[SarahW78 in reply to SarahW78]

I meant *cramping lol