Has anyone developed heat sensitivity?

[Spanishpopmama]

I am wondering if anyone has developed heat sensitivity? I’m 8 years in with no heat sensitivity and curious about developing it?!

[Kenu]

I have sensitivity to heat since first year. It gets above 85 degrees and I’m done ☑️ I wear my ice vest when over 75 when I do yard work and some outside activities. I received vest free thru MSAA program 👍. The cold is not as big of a problem till it’s in low teens and single digits 🥶. Some people never develop this problem 🤷‍♂️ 👍😉 Ken 🐾🐾

[starlight5]

Consider yourself very lucky! and I hope it continues not to be an issue for you.

[twooldcrows]

that would be great not to have it for it started before i was told i had MS...but it is here and i think it will last forever ...anything over 70 in the house gets me to hot so there is times it hits and i have to go find a fan fast otherwise i am a mess...take care and don't wish for it ...ahhahah...it is what it is ...love and great happiness we do learn to deal with what it gives us and we will go on and have a great life for i will not let it stop my life to be enjoyable...

[RoyceNewton]

Yes of course it is mostly to be expected with ms. Look at your body as an electrical system, over heat parts bu work or outside influences and the body will not work as well. Expect these issues to change over your years. Relax it is normal

[greaterexp]

I had little heat sensitivity until this year, when it has increased. I hope you never experience it! It isn’t inevitable.

[goatgal]

My heat sensitivity began before diagnosis and has increased since. I am comfortable only within a narrow range of temperatures in the summertime. I am quite limited in the amount of time I can spend outdoors.

[MarkUpnorth]

Had heat sensitivity forever. Okay, since M.S., but seems like I've has M.S. forever, so forever?It's getting a bit better, but heat with humidity, wring me out please. I maintain my own private cooling center during times like now. (A room with a window unit that I can at least have one room cool enough.) No not -45°F, which is really rejuvenating! But no access to a blast feezer any more. Just have to get out before frostbite sets in if you ever get a chance to try one!

[sashaming1]

I have it moderately. Some people with MS get it and others don't.

[kwhompus]

Yes, 15 years with PPMS and now I am a prisoner to my a/c. The heat fatigues me at a rapid rate. For me, whatever symptoms I have due to MS worsen in the heat. Humidity just drains any ambition I have, mentally as well as physically. It developed over time and perhaps I was a little slow with the recognition.

[JMWCO]

I’ve always had issues even before MS if I get too hot 🥵 (more like heat stroke) or too cold 🥶 (sleepy).

Since MS, I didn’t have issues until this year. I attribute it to all the environments I was in this summer and have realized HIGH HEAT, HIGH HUMIDITY I’m screwed if our too long as I get wicked fatigued and can’t think straight. No MS hug- yet.

Where I live normally is low humidity and it gets 90-100 doesn’t do the same draining effects as an area with High humidity and heat for me which after this summer and realizing that man I’m grateful 😊.

Like others said it’s all different for each of us!

Besides sleeping with ice packs is always nice 😊

[Bwine]

YES! Not only does going outside when it’s so hot and humid affect me, but I get extremely hot inside with the a/c on. I’ll be the only one in a room full of people burning up and fanning myself. I think some of my medications cause it along with MS symptoms, but outside is horrible, IF I’m going to be outside for an extended amount of time I have to be in the pool so I can splash myself often. And even being able to do that, I was affected earlier in the summer by the heat. Took everything out of me. Other than that, I usually go out briefly and back in the a/c I go. I cannot stay out for very long at a time. I tell my husband and son that I don’t know how they do it, all that working outdoors. They don’t have MS but I still can’t understand how they are able to deal with it. How anybody can handle it is beyond me. I feel like it should be as hot for them as it is for me.

[bavery207]

I wondered about the same thing! I am almost always cold, my fingers are usually like icecycles, I was dx with PPMS in 2015. I like to be in the sunshine to warm up a little. I have wondered if I would eventually become intolerant of the sun because right now I love it.

[cljones]

I've had heat sensitivity the whole time. If I go anywhere when it's in the 90s I'm totally give out. I have to crank up the air conditioning in the car so I can get cold before I walk out of the car into a building. Then I have to sit and chill for a while.

[Tazmanian]

I've been heat sensitive since before diagnosis but it has gotten worse now I can't stand heat or humidity. Good Luck

[Sandydemop]

I didn't start out with heat sensitivity but over the last 3-4 years it has started to bother me. But so does cold/frigid temperatures. Humidity is worse that heat for me. the a/c is my buddy. i also saw something called the "chillow" pillow that stays cool. thinking of getting one.

[BlanketTime1]

hello from limboland. my first symptom was heat sensitivity and i developed it when i was 8 years old. it sucks. i think it's one of those things a lot of people have, but that doesn't mean you will develop it.