Are you ready for summer? Heat Sensitive? - My MSAA Community

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Are you ready for summer? Heat Sensitive?

CalfeeChick profile image
CalfeeChickCommunityAmbassador
14 Replies

I know I certainly am! When I think about it, I was very heat sensitive the whole summer before I actually went numb with my first true MS symptoms. I went to the doctor and she told me I just ran out of electrolytes and the heat just magnified my reaction to the heat. I was riding a 45 mile bicycle ride at the time, which I was quite used to riding in those conditions. MSAA offers some great cooling products. I received the cooling vest and it is great! I wear it when I go shopping. I wear it and a big floppy hat when I'm trying to do some gardening.. Thank you MSAA!

Check them out at mymsaa.org/msaa-help/coolin...

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CalfeeChick profile image
CalfeeChick
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14 Replies
rjoneslaw profile image
rjoneslaw

they also have an equipment program as well

carolek572 profile image
carolek572CommunityAmbassador

Yes, I am very heat sensitive. Thank you for reminding me of these resources, CalfeeChick :-D

greaterexp profile image
greaterexp

Thank you for reminding us about MSAA’s great programs!

kdali profile image
kdali

Funny how clear things are when you look back! In high school, I didn’t like to use a hair dryer in the summer because it “made me tired”. It actually made me tired, I just didn’t know why 😂 Didn’t bother me, I slept an extra 10min and would “dry” my hair by driving with the windows down 😬

bxrmom profile image
bxrmom

Growing up and into my early 20s I was not heat sensitive but as I got older I became more sensitive to it and then of course I was diagnosed with the monster know as MS.

BigMar7 profile image
BigMar7

Besides being heat sensitive, I am cold sensitive too!

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply toBigMar7

I'm also cold sensitive.. and I Can't wear socks. Have to very careful buying shoes and slippers. Can only wear Skechers Memory foam shoes.

BigMar7 profile image
BigMar7 in reply toCalfeeChick

Thanks for the tip. I will try Skechers again. I had a pair a long time ago and they are very comfortable. My right foot is a size 7 and my left foot is a size 5. ❤️

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply toBigMar7

my shoe size went from 8 to 9..

CynthiaS profile image
CynthiaS

I couldn't go outside without it living in the south-west. I even have a cooler for backup ice packets if out longer than 3 hrs.

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply toCynthiaS

I do that also.

pamgarner profile image
pamgarner

Heat=Weakness,i do have some tricks that I pretend that work!the best one is where is the air-conditioner?

goatgal profile image
goatgal

It's interesting to recognize in retrospect all those early symptoms. I worked days and went to LA State (now Cal State LA) at night. I parked at the bottom of the hill the school sits on and climbed long wooden stairways to the top. Often one knee or other would suddenly give out or I would trip and fall, scattering my books and papers on the stairs. Decades later I experienced the same thing teaching at night at a community college. Beach and desert trips were a common part of my Southern California upbringing but were always difficult for me because I became overheated more quickly than others in the family and could not lie out in the sun or take long hikes up desert or foothill trails. Now I am very familiar with the sudden weakness in a hip, knee or ankle joint, with tripping caused by foot drop, and overheating followed by fatigue...but since these symptoms began more than 60 years ago, I've learned to work around them and live with them.

mm1527mm profile image
mm1527mm

yes heat sensitivity caused my first relapse leading to my diagnosis but i do love being outdoors over summer even for short periods of time

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