MS is tough!: Hi guys and gal's.. How are... - My MSAA Community

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MS is tough!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
35 Replies

Hi guys and gal's.. How are you doing today? Anyone have or had any appointments you want to share? Sometimes it's hard for me to read all the posts, so I can make one... And read them all here! ☺️

~Lets talk a minute tho! We ALL LOVE THIS SITE! Because we ALL follow some very simple rules..

Religion... We are very proud to have found a way to make this work, we don't push this on each other one way or the other!

Politics.. No! Just No! It is a *Hot Topic* and I don't care how WOKE you are!

Common sense and treating others as you want to be treated!☺️🤗

And don't forget healthunlocked.com/mymsaa/p...

So my friends, let's Laugh, Let's learn, let's vent, let's love, let's be there for EACH OTHER! 🤗💕

J🌠

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Jesmcd2 profile image
Jesmcd2
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35 Replies
RoyceNewton profile image
RoyceNewton

Veery nicely put

positiveness profile image
positiveness

This post is wonderful!

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Great post Jes! Good for all of us! We had our second doses of Pfizer vaccines over 2 weeks ago, no reactions!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toCalfeeChick

That's great to hear CalfeeChick !! 🤗💕🌠

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply toJesmcd2

I forgot to mention, I will be having an epidural tomorrow morning March 31. The five or six vertebrae above where by lower spine was fused about six years ago have decided to curve and created scoliosis there. It’s been a lot of pain for six months or so . It’s all caused by my aggressive Osteoarthritis. ☹️ I forgot to mention I had Zoom appt with my Nuero last week. He ordered a bunch of blood test and a new MRI with and without contrast I've been procrastinating about making those appts. Yesterday, we were on our way to Palo Alto VA for hubby’s appt, left our house at 2:30AM to be ahead of commute traffic and had a tire blow out half way there. Tow truck driver was great. He had to drop us off at Chevron station while he took truck to shop back in our town. We had to wait for a Lyft driver to take us home. I don’t usually promote AAA, but they were awesome and all of the costs were covered by my enhanced membership. Membership paid for it’s self in one call! Will let you know how tomorrow goes.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toCalfeeChick

TripA is amazing!! I had to use it a few times!🤣🤣 I'm so so glad that you weren't hurt! And no traffic! 🤗CalfeeChick I think I'm gonna order you a new body luv! Let us know how you do!! 🤗💕🌠

kdali profile image
kdali

I’m pooped today. I had an appointment but looked at the time wrong and was 30min late 🤦‍♀️ What about you? Val had a full body assessment with PT today and checked out ok 🎉 She’s soooo close to walking! 🥰

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tokdali

Next she will be running so watch out!!!!🤣 They grow way to fast!🤗💕🌠

pamgarner profile image
pamgarner

i had an appointment yesterday with my regular dr. who also has ms.i have fallen 3 times in 7 days,i swore i broke both knee caps and my foot is a bright color of purple.after an xray on my foot I will have to have surgery and put a pin in my bone,broke in 2 places,waiting on ortho to call.as far as my knees,they are not broke (amen) but I have extreme weakness in my legs,i fell doing housework,he said i am fighting my ms,instead of listening to it,when it says sit down ,sitdown! the weakness started after, this 2nd covid shot,he thinks it pushed me into exasperation,that I need to call neuro and steroids keep your bones from healing, we will see,always a challenge and my washine machine broke,it always comes in bunches

Juliew19673 profile image
Juliew19673 in reply topamgarner

Oh Pam how rough! Sending hugs!

pamgarner profile image
pamgarner in reply toJuliew19673

this too shall pass :)

kdali profile image
kdali in reply topamgarner

Oh no, that’s beyond horrible 😞 I’m so sorry.

pamgarner profile image
pamgarner in reply tokdali

comes in bunches right?

kdali profile image
kdali in reply topamgarner

Apparently it comes in bunches of punches 😱 how are you feeling today? Is there anyone who can take your clothes to the laundromat?

pamgarner profile image
pamgarner in reply tokdali

appliance repairman coming tomorrow yeah

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply topamgarner

Tell him to fix my vacuum!😔😭🤗💕🌠

pamgarner profile image
pamgarner in reply toJesmcd2

i'll send him on only needed a $20.00 part :)

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply topamgarner

Shaking my head.. I'm so sorry!! Did you call your neurologist yet? 🤔 Having a relapse is not ok!!! Rest easy my friend pamgarner 🤗💕🌠

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply topamgarner

I hope you can get some help and feel better soon.

pamgarner profile image
pamgarner in reply toCalfeeChick

i am 1 dr at a time:)

Tulip77 profile image
Tulip77 in reply topamgarner

I am so sorry that you are having a rough time!

pamgarner profile image
pamgarner in reply toTulip77

i guess it is my turn,i am so stubborn i probably could have avoided this

mm1527mm profile image
mm1527mm

Had a fever a few days ago and some kind of stomach issue, of course was sent for covid test even though dr does not believe it is wants to confirm as the only place I went was the dentist should get results today and if all good mri this week. Hope all is well with you

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tomm1527mm

I hope your test comes back negitive! And please let us know about your MRI!! 🤗💕🌠

mm1527mm profile image
mm1527mm in reply toJesmcd2

Thank you!❤

2littletime profile image
2littletime

👍💖😉

Tulip77 profile image
Tulip77

Appt with PCP tomorrow- just routine appt. waiting to hear from neuro about results of my MRIs from last week. I suspect I will hear tomorrow.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toTulip77

I was just thinking about you Tulip77 and wondering how things went for you? The MRI went ok? 🤗💕🌠

Tulip77 profile image
Tulip77 in reply toJesmcd2

It was tolerable but I will need stronger meds next time. I was too alert! Lol. Dr called today and said scans were stable. I am glad that they are stable but wish there was a tangible explanation for all the new things going on since last scans.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toTulip77

🤔 what does stable mean? 🤗💕🌠

Tulip77 profile image
Tulip77 in reply toJesmcd2

No changes as to MS. No new lesions seen 🎉. My cervical MRI did show additional disc problems that were not there over the summer, but I am not in pain from it so I think it is ok.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toTulip77

Yeah!!!! 🎉 That's Awesome!!!!! And you start aubagio soon? 🤗💕🌠

Tulip77 profile image
Tulip77 in reply toJesmcd2

Yes. I started it 11 days ago. No issues so far.

carolek572 profile image
carolek572CommunityAmbassador in reply toJesmcd2

That’s where you keep the horses, silly 🙃

carolek572 profile image
carolek572CommunityAmbassador

‘ms’ is tough, but we are tougher, Jesmcd2

Keep Smiling :-D

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