Restless Legs and Ropinerol: I suffer from... - My MSAA Community

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Restless Legs and Ropinerol

Ikeeptrying profile image
9 Replies

I suffer from RLS and have for years. In an attempt to fix it I recently asked my neurologist about Ropinerol. Here's his reply, Your thoughts.

"If requip 0.25mg at bedtime is not helping, each week you can go up by 0.25 mg until you reach 1mg at bedtime. If that's not helping, we can easily increase the dose.

Most people need between 2 and 4 mg a day to achieve a good response."

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Ikeeptrying profile image
Ikeeptrying
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9 Replies
CalfeeChick profile image
CalfeeChickCommunityAmbassador

I would definitely give it a try after you research it online. Best to you!

jimeka profile image
jimeka

Do you know that health unlocked have a forum for Restless Legs? It has been a great help to me. I take pramepexole and the only issue I have had is that my doctors kept increasing my dose so I suffered augmentation. I hope that you get sorted, there are some good doctors in the USA that specialises in Restless Leg Syndrome. Let us know how you get on, blessings Jimeka 🤗

Midnight-Blue profile image
Midnight-Blue

He’s correct. Ropinirole 2mg is one of the few medications that CAN be “safely “ increased (,I’m going to get a lot of flak from this comment.). But it USUALLY/MOST of the time works. I’ve been taking it for a few yesrs: 2 twice a day, 4 at night along with 2 mg Ropinirole (Same medication buta bit different.). It USUALLY works for me but when it doesn’t (Like the past 36hrs!) it is exhausting, aggregating & uncomfortable (legs). You might get some messages from some members who are totally against this (&

similar medications.); I did. But, ultimately the choice is yours, like it was/is for me. I chose the medication. (My legs, between MS & RLS, almost want me to just saw/remove my legs!) You do what is best for you with guidance from your Neurologist. (“Members”, as far as I know are NOT Physicians BUT will tell you about their own experiences with medications [Or whatever the topic is about.])

We are always here to help and foremost, to listen!🤗

MarkUpnorth profile image
MarkUpnorth

I used several drugs for years prescribed by my doc's for RLS. Some helped. Others didn't. All stopped working in a bit. I have successfully used magnesium citrate before bed, with success for 6? years now. Bottle dose is 2 daily. Okay, I'm up to 3 before bed. But it does the trick for me.

Ikeeptrying profile image
Ikeeptrying in reply to MarkUpnorth

After reading your post I ordered some from Amazon. Supposed to be here today. I'll keep you posted. This is the only thing you take, right?

MarkUpnorth profile image
MarkUpnorth

Yep!

Midnight-Blue profile image
Midnight-Blue

Hi! Been “walking” along and saw your post. Your doctor is correct; PC told me something similar. My Neurologist “tweaked” it some using my input. You probably will hear some negative comments about this medication however, keep in mind, we’re not doctors only members advising by their own experience/thoughts. I suffer horribly with RLS (Not just at night.) & Ropinirole HCL 0.5mg 2 twice a day & 4 at night + The same medication but ER 2mg with the 4 tablets. It works about 90% of the time but when it doesn’t I’ll be up close to 48hrs. Personally, I’d try anything that would even give me relief 50% of the time! Ultimately the choice is yours and your doctor SHOULD answer any questions you might have.😙

Ikeeptrying profile image
Ikeeptrying in reply to Midnight-Blue

Hi Ms. Blue, Love your name. I'm up to .75 mg but it's working. We'll see how it goes. Just afraid I'll keep having to increase the dose until I augment on it. But not looking for trouble. Glad to hear from you. Cheers, MC

Midnight-Blue profile image
Midnight-Blue in reply to Ikeeptrying

You know, I never even heard of the word “augment” until I joined here & you know what? I don’t give a dam about hitting that stage. I had read recently about a woman who was taking a medication I used to take.(Clo something Pam) & I used it at night for sleeping & not only did it work wonderfully but I didn’t have RLS (Nor did I know I had MS but that’s a whole other story.) Within a week my RLS was back & about that same time was diagnosed with MS! And, I was not sleeping well. (That hadn’t changed!) When my PC , in his infinite wisdom, took me off that medication I kept quiet. But, that’s the last time I did that! Worry about augmenting on this medication for RLS? Nope! But, that’s just me. 🤨

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