Starting Kesimpta

[Hopeingforthebest]

Good Morning to Everyone!

I have been reading your posts for a couple years now but have never posted myself. I am 65 now and was diagnosed with MS in 1976. It has now been 44 years living ith MS. I was on Avonex for 18 years and went off a couple years ago , it just wasn't helping any longer. A year ago I tried Ocrevus but did not have a good experience with the infusion. Now I will be starting Kesimpta next week and was wondering if anyone is taking this and what if any kind of side effects you might be having? I am a "Nervous Nellie" when it comes to taking a new drug, so I guess I'm looking for reassurance. Thanks

[Sweetheartonvdayl]

Hi Hoping for thebest😊I'm switching to kesimtpta, so ill be checking out everyone 's comments.

🙏❤Lisa💕

[Hopeingforthebest in reply to Sweetheartonvdayl]

I have spoke to my Dr and to the Pharmasist and about the side effects and they both tell me they are mide i.e. muscle ache, tiredness you know the usual that come with most MS drugs. Lets cross our fingers on this one!

[Hidden]

Hi I am currently on Ocrevus and in general have loved my experience,but with the covid-19 complications I am considering switching to kisempta and I know you were looking for support and encouragement, as I haven't tried it yet don't feel qualified to do that but am interested in this new medication enough to talk to my neurologist about it. I was wondering if you would be ok with sharing your experience? Robert

[Hopeingforthebest in reply to Hidden]

Absolutely! Hopefully I'll have nothing but good things to report!

[Hidden in reply to Hopeingforthebest]

Thank you so much and again best wishes

[Sweetheartonvdayl in reply to Hidden]

How's it going bikeguy ?Wishing the best for you😊

🙏❤Lisa💕

[Hidden in reply to Sweetheartonvdayl]

Hi Lisa thank you for the lovely inquiry, I am doing okish, considering my new year started with a heart attack, followed closely by covid-19, I guess being alive is doing pretty well. How are you? And of course I wish you all the best Robert

[Sweetheartonvdayl in reply to Hidden]

I , so far, dodged the COVID bullet. If people would just wear a mask!!! Nice to hear from you- considering everything you had been through. May God keep you safe & healthy.

🙏❤Lisa💕

[mm1527mm in reply to Hidden]

I am in same boat looking into it as well!

[mm1527mm]

Let us know how it goes! I am on ocrevus but was on a facebook group for kesimpta as it seems like another similar option for me and it seems many are doing well and had no side effects which is encouraging and great to have another option. Blessings to you keep us posted

[Iona60]

Thanks for posting this. I will call and ask my neuro about this. I am concerned about not being able to get a COVID vaccine until June, due to the timing of my Ocrevus infusion. Maybe she will let me switch.

[jimeka]

It sounds really encouraging, just a once a month self administered injection, let us know how you all do. Blessings Jimeka 😊

[Sukie427]

Wow, never heard of it. Does it have a generic name? Good luck and let us know how it works!