Experiences with Avonex | HealthUnlocked

106 public posts

Hello everyone I'm new to this!

Now I take Avonex and so far doing alot better.Now I take Avonex and so far doing alot better.

Ladybriarsin My MSAA Community

Avonex at 65

Hi, I've been on Avonex for about 15 years. I retired this year at the age of 65 and through my insurance company got 3 months of Avonex. I am at the end of my last refill. My neurologist has me switching to every 2 weeks until it runs out. The problem is Medicare does not cover the drug.Hi, I've been on Avonex for about 15 years. I retired this year at the age of 65 and through my insurance company got 3 months of Avonex. I am at the end of my last refill. My neurologist has me switching to every 2 weeks until it runs out. The problem is Medicare does not cover the drug.

P00dleLadyin My MSAA Community

Hair Loss

I was on Avonex for 12 years and never had any trouble.I was on Avonex for 12 years and never had any trouble.

bshigginsin My MSAA Community

Avonex vs Ocrevus

Does anyone use Avonex? I’m just wondering because I started Ocrevus but lost a lot of hair. Was wondering if some of you still use Avonex?Does anyone use Avonex? I’m just wondering because I started Ocrevus but lost a lot of hair. Was wondering if some of you still use Avonex?

Horse714in My MSAA Community

Avonex vs OCREVUS

My neurologist says no but does anyone know if you can go back to Avonex after the doctor put you on Ocrevus and you don’t feel comfortable with it???My neurologist says no but does anyone know if you can go back to Avonex after the doctor put you on Ocrevus and you don’t feel comfortable with it???

Horse714in My MSAA Community

WBC keeps getting lower, anyone else on Avonex have this happen?

I’ve been on Avonex for 9 years now. The last two lab tests my WBC has been low and the last one was the lowest yet at 3.1. The low end of normal for this lab is 4.0. I also have scleroderma and Sjögrens. Has this happened to anyone else on Avonex and is your doctor not concerned?I’ve been on Avonex for 9 years now. The last two lab tests my WBC has been low and the last one was the lowest yet at 3.1. The low end of normal for this lab is 4.0. I also have scleroderma and Sjögrens. Has this happened to anyone else on Avonex and is your doctor not concerned?

Hjr4in My MSAA Community

Vaccines FYI

For example, Copaxone, Rebif, Avonex, and Betaseron don't prevent you from building immunity, and they don't make you more likely to become sick from any vaccines.For example, Copaxone, Rebif, Avonex, and Betaseron don't prevent you from building immunity, and they don't make you more likely to become sick from any vaccines.

sashaming1in My MSAA Community

WBC not in normal range on last 2 tests

I have systemic scleroderma, Sjögrens and MS and I’ve been on Avonex for my MS for 9 years now. The last two lab tests my WBC has been low and the last one was the lowest yet at 3.1. The low end of normal for this lab is 4.0.I have systemic scleroderma, Sjögrens and MS and I’ve been on Avonex for my MS for 9 years now. The last two lab tests my WBC has been low and the last one was the lowest yet at 3.1. The low end of normal for this lab is 4.0.

Hjr4in Scleroderma & Raynaud's UK (SRUK)

Do you see the possibilities around "YOU"?

The next year I believe Avonex then Copaxone came along. Rebif was next, it meant fewer needles so of course, I went for it as soon as it came on the market.The next year I believe Avonex then Copaxone came along. Rebif was next, it meant fewer needles so of course, I went for it as soon as it came on the market.

RoyceNewtonin My MSAA Community

Is this going to change my retirement plans?

I have been told by a specialist that I have COPD and asthma. I was never an asthmatic during my youth or working life. Three bouts of chest infections, bronchitis? Flu? I never even went to the dr with it, this over a long life is not much. Then suddenly I started.I had lived with a heavy smoker forI have been told by a specialist that I have COPD and asthma. I was never an asthmatic during my youth or working life. Three bouts of chest infections, bronchitis? Flu? I never even went to the dr with it, this over a long life is not much. Then suddenly I started.I had lived with a heavy smoker for

Norscain Asthma UK community forum

Still taking Avonex and what helps

I’m still taking the Avonex since 2010. just went to the doc and had an mri it did not show any progression the last two I just turned 50 and my doc for the first time talked about stopping at some point. I changed from the manual injection to the pen and it is much easier and so fast!I’m still taking the Avonex since 2010. just went to the doc and had an mri it did not show any progression the last two I just turned 50 and my doc for the first time talked about stopping at some point. I changed from the manual injection to the pen and it is much easier and so fast!

Takinstillin My MSAA Community

Nasonex

Hi there, just been prescribed this for Hay fever. It's a nasal spray and I'm worried it might affect my T. GP says it won't. Just wondered if anyone has had any problems with this?Hi there, just been prescribed this for Hay fever. It's a nasal spray and I'm worried it might affect my T. GP says it won't. Just wondered if anyone has had any problems with this?

Glynne1in British Tinnitus Association

Has anyone with Secondary Progressive MS been prescribed Ocrevus or is on it?

I was diagnosed with RRMS in 1996 and about seven years ago my doctor took me off Avonex and I went on Gilenya. That didn’t work for me at all, I quickly worsened and now I have SPMS. My doctor doesn’t want me back on Avonex instead wants me on Ocrevus.I was diagnosed with RRMS in 1996 and about seven years ago my doctor took me off Avonex and I went on Gilenya. That didn’t work for me at all, I quickly worsened and now I have SPMS. My doctor doesn’t want me back on Avonex instead wants me on Ocrevus.

Pia7in My MSAA Community

Hello, I am activist.

I have been on Avonex for most of the time. I tried Plegrity but my body did not like it. Even though I have had breast cancer twice, I have MS and I have a brain tumor I feel as if I am the healthiest person I know because I never get sick...no colds, no flu, no allergies.I have been on Avonex for most of the time. I tried Plegrity but my body did not like it. Even though I have had breast cancer twice, I have MS and I have a brain tumor I feel as if I am the healthiest person I know because I never get sick...no colds, no flu, no allergies.

activistin My MSAA Community

Aubagio usage

I have been taking Avonex but it isn't doing the job. I am thinking about switching to Aubagio. Just wondering what others on it think of it. Thank you for any help.I have been taking Avonex but it isn't doing the job. I am thinking about switching to Aubagio. Just wondering what others on it think of it. Thank you for any help.

SandraFHin My MSAA Community

Back to whining

But today my muscles feel like I had Avonex. I feel sore as if I had worked out (I didn’t). My head hurts and I hurt ALL OVER. If I take more muscle relaxers then I will be DEEPLY DEPRESSED tomorrow and I am very sad already. I am so tired of being in pain. . .But today my muscles feel like I had Avonex. I feel sore as if I had worked out (I didn’t). My head hurts and I hurt ALL OVER. If I take more muscle relaxers then I will be DEEPLY DEPRESSED tomorrow and I am very sad already. I am so tired of being in pain. . .

TracyBellein My MSAA Community

effect of nasal steroids on asthma

hello all, DS has allergic rhinitis and asthma and we have recently started a new steroid nasal spray (dymista), and have also tried Nasonex. it seems that these are making his asthma symptoms worse. His asthma used to be well controlled with low dose clenil modulate, but since on the spray he has startedhello all, DS has allergic rhinitis and asthma and we have recently started a new steroid nasal spray (dymista), and have also tried Nasonex. it seems that these are making his asthma symptoms worse. His asthma used to be well controlled with low dose clenil modulate, but since on the spray he has started

Montilyin Asthma UK community forum

Poor medication choice!

Avonex didn't work for me. I had multiple relapses of optic neuritis on it and feared losing my sight permanently. I would NOT recommend it and choose another medication, such as tecfidera, immediately.Avonex didn't work for me. I had multiple relapses of optic neuritis on it and feared losing my sight permanently. I would NOT recommend it and choose another medication, such as tecfidera, immediately.

injadain My MSAA Community

Dry, itchy skin

Avonex has been so hard on my skin. Regular body lotion does nothing to relieve the dryness. How are those of you with dry, itchy skin handling it? I'd love some product recommendations!Avonex has been so hard on my skin. Regular body lotion does nothing to relieve the dryness. How are those of you with dry, itchy skin handling it? I'd love some product recommendations!

ynggalin My MSAA Community

7 weeks on Low Dose Naltrexone (LDN)

Other interactions include alcohol, narcotic medications (Ultram, Morphine, Percocet, Tramadol, Duragesic Patch or Codeine), steroids, and interferon (Beta Seron, Avonex or Rebif). “LDN should probably not be taken during pregnancy.Other interactions include alcohol, narcotic medications (Ultram, Morphine, Percocet, Tramadol, Duragesic Patch or Codeine), steroids, and interferon (Beta Seron, Avonex or Rebif). “LDN should probably not be taken during pregnancy.

libraryanniein Restless Legs Syndrome

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