Hey, new to community. Just a bit about ... - My MSAA Community

My MSAA Community

8,042 members β€’ 19,250 posts

Hey, new to community. Just a bit about me. 😎

BabygirlGiulianna profile image
β€’25 Replies

Hello all, I just wanted to introduce myself and share a little about myself and share a l little of my health background. I am few weeks shy of 35 y/o wife to a great husband and mother to our beautiful 8 y/o daughter. I am 18 years into my MS journey after being diagnosed at just 17. After that few years later and couple neurologist later it was again suggested to have lumbar puncture done. When first diagnosed, it was suggested but my Dad felt it was not necessary since neuro said my lesions were the classic MS lesions and she was sure. Now about 5 years later and 2 years after the passing of my Dad I decided to proceed. This test revealed both that I had no "MS" in spinal fluid but I have lymes. At first was glad "This can easily be treated, maybe I was misdiagnosed" but wasn't the case. I have MS and lymes. Yay me! (Btw have sarcastic personalityπŸ˜„). Next I had to treat this and BAM oh... I'm pregnant now. So was treated with 28 day Z-Pak like tx. Now 7.5 years later just several months ago was diagnosed with incidental finding of 8.5 mm cerebral brain aneurysm. I was admitted to Jefferson following week and treated (thank God for modern technology) with a flow diversion stent. Have follow up this month to check on progress. Fingers crossed. Oh lastly for MS over the 18 years I've done just about every injectable DMT and found out few months ago I was 20 years out of being wheel chair bound and disease was becoming more aggressive so I am about 2 months post my first Lemtrada infusion treatment, again fingers crossed! πŸ˜… So that's about it, my health history story in a nutshell.

25 Replies
Royjr profile image

Hello and welcome. Hope to see future posts from you

ssdw1958 profile image

Hello new b not a way to meet sorry to meet this wat my fingers are crossed for you and I will add you to my list of prayers. I do like your outfits Christmas or Halloween πŸŽƒ??

Oh by the way I am ssdw1958 I was diagnosed in 2004 but as we all know I probably had this monster of a disease for 20 years prior I am know 59 years old an walk with a rollator and use s wheelchair out of the house.

I hope everything goes well with your tests.

BabygirlGiulianna profile image
BabygirlGiulianna in reply to ssdw1958

Thank you! They are matching Christmas jammies. My best to you also!

jimeka profile image

You will feel right at home here with a touch of sarcasm and humour, so welcome. You have had a rough ride like most of us on here, vent anytime, share your jokes, crafts, anything, we come from all walks of life but we share ms. Blessings Jimeka πŸ¦‹ πŸ¦”

BabygirlGiulianna profile image
BabygirlGiulianna in reply to jimeka

Thank uou! Without a sense of humor in our shoes... ugh couldn't imagine the misery lol.

Jesmcd2 profile image

Well hello there, story in a nutshell! πŸ™ƒ Quite the ride you have had!. And still on!

I wish you tons of luck for your appt!! Please keep us updated!

Know that you can laugh, cry, vent and just be with others that understand! Well not completely. But mostly. πŸ€—πŸ’•


BabygirlGiulianna profile image
BabygirlGiulianna in reply to Jesmcd2

Lol, well thank you! We could all be so much worse off!

Midgey_Midge06 profile image
Midgey_Midge06 in reply to BabygirlGiulianna

And u will so love Jes’ sarcasm as well. When i am down she always knows how to make me smile 😁😁

bxrmom profile image

Welcome to this wonderful group of friends BabygirlGiulianna , sorry for the reason. You really have been through it. I hope that the new drug works for you, please keep us updated when you can. Sorry to hear about a brain aneurysm, glad they caught it in time though.

I'm Jessie and I have had MS since 2006 when I was diagnosed after the blurred vision sent me for all kinds of testing. The lumbar puncture was the confirmation of the dx. Bad case of the flu sent me into a bad relapse in 2008 and put me in the hospital. I can no longer work because of dizziness that I always have..some days are worse than others.

Look forward to getting to know you,


BabygirlGiulianna profile image
BabygirlGiulianna in reply to bxrmom

Awww thank you! My best to you as well!! I fortunately only had vertigo once from an exacturbation and could not deal if it was that frequent!!! Mine as well be a daily intoxicated mess πŸ˜’. Sorry, that stinks!

CalfeeChick profile image

Welcome to our group Ms BabygirlGiulianna You've had quite a roller coaster ride, but look at how you've survived! A handsome hubby, beautiful daughter, and great attitude! Yep, You are an MS Warrior for sure and we welcome you! Feel free to read along, make comments and ask questions. We're here for you, between us and MSAA, there's a treasure of information, fun reading, lots of help for you!! Welcome!

BabygirlGiulianna profile image
BabygirlGiulianna in reply to CalfeeChick

Thank you, couple of the things I was blessed with! πŸ€΅πŸ‘±β€β™€οΈ I'm looking forward to seeing what's in store on here.πŸ€—

Awww thank you, she is a sweetheart! Yes my aneurysm was found in my yearly MRI😲. Thank God! Have to admit that was the one time in 18 years I was grateful to have had MS. I handled the Lemtrada really well, was scary at first but guess you can say that goes with most things the days! The hardest part for me was being somewhat isolated with an even more compromised immune system, I'm too social and outgoing to be forced to not be out and about lol. Other than that though it's kinda exciting if it'll be what it's suppose to be.

mrsmike9 profile image
mrsmike9 in reply to BabygirlGiulianna

Those MRI's can find all kinds of things! Two years ago it found tumors on my thyroid which resulted in having it out. Fine with me!

Jazzyinco profile image

A very warm welcome to you, to our MSer Warrior Family here Babygirl! Yes, U definatley are a warrior! & Love the attitude!😍 WOW, u've come a long way on what a wild roller coaster ride! Whew! ("Wipesforehead")& Many Blessings, & PrayersπŸ™ For Ya! & much LoveπŸ’— Again welcome here! We R inn this together! Strength in numbers!πŸ’ͺπŸ’ͺ---Jazmine πŸŒΉπŸ’œRose

janetb1968 profile image

Hi BabygirlGiulianna lovely to meet u from across the big pond xxx πŸ™‚πŸ™‚πŸ™‚πŸ™‚

jackiesj profile image

Welcome!My you certainly have been thru it.At least they found a lot out which is good a lot of things that were happening....This room these peeps are such a blessing and relate so well.Beautiful family ty for sharing...

Kenu profile image

Welcome to our crazy 😜 group of MSers. Great place to vent and find out lots of information on MS from people who care and understand πŸ‘. You sound very positive and have been thru a lot. Thanks for sharing your adventures and prayers are with you and your family πŸ™. πŸ˜‰πŸΎ Ken

Peruzzot profile image

Welcome to the group. Your family is adorable in matching jammies!πŸ˜‰ with a sarcastic attitude you'll get along really well with everyone here. Some of us are a little more sarcastic than others. But we get along well. We know what everyone is going through because we're all walking the same path just in slightly different shoes. Nature of the MS beast...no one's MS is exactly the same.

carolek572 profile image

Hey BabygirlGuilianna,

Welcome to this forum! I appreciate knowing a little about yourself and you have been through a lot. I love the photo as well.

This forum has given me a resource to discover that I am not alone in this. MS does affect each and every one of us the same and differently. All approach this ms the same and differently. And that is where we all help each other.

Keep smiling,

Carole :-D

lbenmaor profile image

Welcome to our warm group of fighters! Always feel free to express and ask questions.l


Such a cute family! I hope your treatment is very effective! <3

greaterexp profile image

Great picture of a great family! I appreciate your attitude and sense of humor, both of which help keep us afloat!

mrsmike9 profile image

Good golly! About the only thing you haven't gone through is getting hit by a truck! Hope your check up goes well and NOTHING else happens!

BuzzyMom profile image

having this sucks big time but we have to keep on keeping on!! I know it’s hard all the time but we can’t let MS winπŸ§‘πŸ–€

You may also like...