MS Hug

[Rjaleen]

Hope everyone's day is going well! MS Hug...has anyone heard of or experienced this?

[falalalala]

Yes. I have.

[Rjaleen in reply to falalalala]

Is there anything you do for relief?

[falalalala in reply to Rjaleen]

I just lived with it. It is an uncomfortable feeling though.

It eventually went away. I am not sure why-maybe progression of the disease.

[Rjaleen in reply to falalalala]

Yes, very uncomfortable. Thanks so much for your response😊

[falalalala in reply to Rjaleen]

My main complaint with symptoms was/is Lhermittes sign and foot drop.

medicinenet.com/lhermitte_s...

[Midgey_Midge06 in reply to Rjaleen]

Baclofen was my only relief. I had a breast reduction which helped a lot but when i first had them it was awful. They would last months at a time.

[jimeka]

Hi Rjaleen if you look to the right of your post you will see related posts where you can see what other members have said . The ms hug is not nice. Blessings Jimeka 😊

[Rjaleen in reply to jimeka]

Thank you Jimeka😊

[bxrmom]

I would get them every once in awhile after I did an injection of Copaxone. Most uncomfortable thing I experience in my life. It went away shortly after it started it though.

[twooldcrows]

oh my yes the hub ...yes makes it hard to breathe so try to relax ...it is hard to for it is nerve racking to try to breathe deep so really have to try and realax ...i bet most have had it more times than we want to count...take care they do pass..

[twooldcrows in reply to twooldcrows]

that was to say the HUG....sorry about that ...hahhahah....

[Rjaleen in reply to twooldcrows]

Lol...no worries 😊

[Rjaleen in reply to twooldcrows]

I will definitely keep that in mind to "Relax" 😊 Thanks!

[greaterexp]

Yes, they were worst during the relapse, but lingered for a couple of years and gradually lessened. Some people find some relief from mild heat, mild compression, which seems counterintuitive, or muscle relaxers.

I’m sorry you’re experiencing this uncomfortable symptom.

[Rjaleen in reply to greaterexp]

Thank you! I will try that😊

[Peruzzot]

I get them every once in a while. Easier said than done but try to relax. I've also tried stretching and sometimes it helps.

[Bebeau]

Hi Rjaleen. I have transverse myelitis, a condition similar to ms. I get the hug, got it frequently when first diagnosed, but less often now. It’s a bit like a “you’re doing too much” warning, telling me to slow down and rest a while. I just want to take my bra off! And I do, but it makes no difference, that tightness is so uncomfortable and makes it feel hard to breathe. All I can say is rest, and it will wear off xx

[pamgarner]

ms.hug ,how deceiving!they neeed to call it what it is,put a rubber band around yourself until you are in spasms.that was my 1st sign of having ms.since I have been on Ocrevus for treatment they have gone away,knock on wood.It usually happened to me if I was standing long periods of time,my answer again was "just sit down woman!"

[Rjaleen]

Thanks everyone, I really appreciate your feedback about this, it's very helpful! Have a great week😊

[Elizt3]

I used to experience it periodically (a day here and there over the last 20 years). Now I’ve had it three or more days each week since May. It makes it difficult for me to exercise. I’ve tried stretching, but it often makes it worse. I’m on gabapentin and my doctor has told me to increase the dose. Not sure that really makes much of a difference? I bought a rib belt (Curad brand) which provides pressure around my rib area. That helps most of anything I’ve tried (although I really don’t enjoy wearing it).

When I’m lying down, I use a heating pad and think that helps a bit as well.

[Juleigh21]

I haven’t had it in a few years. I had it after a nasty relapse once. I had done solumedrol for several days. I thought I was having a gall bladder or heart attack. Went to the ER and they gave me an IV of Valium. My doc later gave me a prescription for Valium for when the hug hits.

[DisMLEVal]

The first few times I had the "hug" I thought I was having a heart attack. I hate everything when they come on.

[lauranell2u]

I get it when I get too hot. Once I cool off I’m ok but it’s like a sinking ship...going down down down..LoL

[sashaming1]

I've heard of it. I understand that it is fairly common although I haven't experienced it.

[mrsmike9]

I've had it once and fortunately it didn't last long. Having heard about it, when it happened I didn't panic. I just breathed my way through it. It felt like a heart attack!

[kwhompus]

Everyday, I begin to worry if they don't show up. Sometimes the "hug" is so strong it'll pull your heel up to your butt! OUCH. A hug is a hug is a hug ,unless its a MS hug.

[Bobbysgirl5]

Yes, ms hug is a well known phenomenon, Specialist will be able to help maybe prescribe with capsicum cream. Hope this helps

[kdali]

Did you find anything that helped? I think I’m having them now 😣

[rjoneslaw]

sorry just started going through unread email.you can go to themsgym.com and they have free download of an exercise for the ms hug