Anyone have experience going to U of M?

[BumbleBeeBumble]

My doctor told me today she would be sending me to university of Michigan neurology. Wanted to know if any of you have been and how you like it.

Also does your MS cause you any GI issues?

[bxrmom]

I have never been there but I have heard from people that went there for various different things and they really liked it. I hope that you get more replies. Keep us updated.

[mrsmike9]

I have not been there. As having one autoimmune disease, you can have multiple. A few years ago I was diagnosed with collagenous colitis. Simply awful. I lost 20 pounds in a week. Horrific runs. No control. It is also an autoimmune disease and there are no FDA approved meds for it. I was told to eat a Pepto bismol tablet 4 times/day. (Hate the taste of them but my husband - bless him - found "cherry" flavored ones at Walgreens.) It did calm down and for now am back to normal. If I ever have, for no reason, a rush trip to the bathroom, I eat one of my Peptos. I never want to go through that again. I seriously thought I was dieing. He diagnosed through a colonoscopy. I only had to drink 1/3 of the prep as I had nothing in me. It ran clear almost right away.

[Elle61]

Is that a teaching University ? My Doctor sent me once a long time ago to UNE for my MS , it was for teaching young Doc's about MS .

elle61

[BumbleBeeBumble in reply to Elle61]

Yes it a teaching hospital.

[Elle61 in reply to BumbleBeeBumble]

I got paid for telling them my experience with MS .I had 3 sessions with about 5 student Doctor and me . Included them questioning me and neuro exam.

Is this what you are going to do? The Doctor that is sending you would know if this is what's going to happen other than that I have not heard of that type of thing for MS.

elle61

[BumbleBeeBumble in reply to Elle61]

Nope I sm going as a patient.

[Ontheroadagain4now]

I was diagnosed with MS in 2000 after going to the Mellon Center at the Cleveland Clinic for a second opinion.

At that time the U of M did not have an MS clinic and they were trying to recruit the Director at the Mellon Center. He did not accept the offer.

My insurance company, at that time, wanted me to go to the UofM for a second opinion. I refused and went to the Cleveland Clinic instead.

I can’t offer any opinion about UofM now but I know the Cleveland Clinic is good. They have an experienced staff and a great research team.

This is just my opinion.