Hi everyone, I have posted advice Before but, this time I am asking for help. I have a boat load of weird symptoms and am wondering if anyone else has been down this road?
It started slowly over a year ago. Cold intolerant (I used to go outside in 20 degree weather without a coat and it not bother me),Reynauds,intermittent swollen,stiff crackly fingers,LOTS of fine facial hair( I spend hours plucking& shaving my forehead,cheeks,jaw,under eyes),small amounts of intermittent breast milk( I'm 47 and my baby is 13),screwed up periods,every 2-4 weeks,brownish reddish pattern areas on my face( cheeks,I've tried everything nothing works) intermittent body temp regulation issues( my temperature will go up to 101 and I am watching t.v. In a 66 degree room mid winter), intermittent metallic taste,frequently smell cigar or cigarette smoke in my home. No one smokes in my family,not friends, none. New problems with muscles,feels different than MS, very tight neck and between shoulders.my hands go numb. I have massages every two weeks,do stretches,tried dry needling ( ouch!)Pt&OT weekly, all help temporarily,it makes sleeping hard and at times it limits my flexibility so badly, I can only move my head 15 degrees in any given direction.And awful painful.
Went to an Endocrinologist,my pituitary was " very pudgy" on my last 3 annual MS MRI. I though "Eureka this is the problem". My hormones must be messed up. Had Pituitary MRI= normal. Lab work for all hormone levels=normal.
Advice by Endocrinologist " keep log of symptoms " wait and see. Could be due to an MS lesion somewhere.
Neurologists( who has been dropping ball with me for years) says" not Ms related"
PCP- no clue. I asked to be tested for lupus,begrudgingly agreed ,not done yet.
I am frustrated and feeling like I did before I got MS diagnosis. I know something's messed up, I feel all these symptoms.Am I crazy, is it all in my head?
If anyone has any insight or been thru this your guidance would be most appreciated!
Have a great day and thank you for reading this way too long post!🙂