Hey from the Backseat: Hey everyone! I... - My MSAA Community

My MSAA Community

8,951 members20,663 posts

Hey from the Backseat

Dieselbaby profile image
21 Replies

Hey everyone! I recently joined this group mainly because it would be nice to have someone understand me without a lengthy explanation of the hows & whys of MS; especially when a new systom hits & you don't know why/how. How do you explain that to someone who dosen't have MS & looks at you like you may be a fruitcake?

It would be nice to not feel so alone all the time.

Written by
Dieselbaby profile image
Dieselbaby
To view profiles and participate in discussions please or .
21 Replies
greaterexp profile image
greaterexp

You're in great company here! Welcome! We really do understand what you go through, with all the weird and changing symptoms and people not understanding or even believing you.

I have found some great sites from which I've printed off information to give to family and friends. Some are blogs and others are general information sites. Others may never really understand unless they get MS themselves, but information from people other than ourselves can sometimes seem more believable.

mymsaa.org/

multiplesclerosis.net/commu...

kdali profile image
kdali

Welcome! I try not to explain.

jimeka profile image
jimeka

Hi there, you are definitely not alone. Feel right at home here, you are amongst people who really understand. We all have ms, but we are all different. Welcome, blessings Jimeka 😊

cindyrn68 profile image
cindyrn68

You've found the right place. I have found the people here to be warm, friendly, and very helpful.

pamgarner profile image
pamgarner

ok people! you can see I struggle when I walk,so you need an explaination,here it isI have something that makes me struggle to walk,do you still need to ask?to those folks i say,DUHHH

My response, for years...

After my hip replacement and now this!

“If you don’t like it, don’t look”

Sounds harsh, after typing it...

I have never asked anyone, their ‘story’....

falalalala profile image
falalalala

I tell them I'm hammered. :)

Actually no, I usually just respond by saying I have MS.

Many times, they are too embarrassed (?) to pursue a nosier line of questioning but if I know them well, they might ask other things.

Dieselbaby profile image
Dieselbaby in reply to falalalala

Lol Can I borrow the "I'm hammered" line 🤣

falalalala profile image
falalalala in reply to Dieselbaby

Sure!

Peruzzot profile image
Peruzzot

Welcome to our little division of fruitcakes!😁 🙃😲😁😎

We certainly understand each other without lengthy explanations, sometimes lengthy healthy rants, but no explanations.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Well your in the right place Dieselbaby ! We are all fruitcakes here! Oh wait, that's pretty much just me! 😊 But we get it!!! And here your not alone!🤗💕🌠

mrsmike9 profile image
mrsmike9

So happy you found us! Don't cha hate it when you say, "I am so tired" and the response is "I get tired, too"? Others just don't get it! We do...

Tinker-Belle profile image
Tinker-Belle

Welcome to the group. Rest assured, you are NOT a fruitcake. I am looking forward to having you share in this group. We are so diverse yet have so much in common, if that makes sense. Please share your insights, ask your questions, and laugh along with us as we navigate this lovely thing called MS.

CV97 profile image
CV97

Welcome aboard! Pretty pup in your profile pic! Looks so soft and shiny!

Dieselbaby profile image
Dieselbaby in reply to CV97

He says Thank you 🐶🐶

CV97 profile image
CV97 in reply to Dieselbaby

What breed is he? Lab?

Dieselbaby profile image
Dieselbaby in reply to CV97

1/2 Lab 1/2 Great Dane; he's getting way big on me. He's 9 months 90lbs with 35" chest! 😁🐶

CV97 profile image
CV97 in reply to Dieselbaby

That explains why I couldn't figure it out. Sure looked like Great Dane hips, but the face looked lab-ish.

I've got a half Dane, half German Shorthaired Pointer. He's not quite as tall as our last full blooded Dane, but still stands at 32" shoulders and probably close to 140 lbs (hasn't been weighed since neutered in Aug, 125 then). Our boy is almost 15 mos. He's quite a fool!

carolek572 profile image
carolek572CommunityAmbassador

Welcome to the forum, Dieselbaby :-D

Welcome aboard!

👋👋👋👋👋👋

mm1527mm profile image
mm1527mm

Welcome! It is great to have a place where others understand you. Blessings

You may also like...

Hey 👋 trouble with diagnosis

Hi everyone ! I’m Having trouble with diagnosis my mum had ms Unfortunately she passed away last...

Hey,

🙈 Jump in anyway! 😂 Hows your MS? Are you kicking it's butt today? Or are you letting it have a...

Hey, new to community. Just a bit about me. 😎

Hey there!

Hi, Glad to be here with you all fellow MS warriors. Been relapsing and remitting for 18 years now

What would be the first thing you you do if you were free from MS?

have to think about this further but how about you? What would you do first?