Prep'ing for my Ocrecus infusion tomorrow

[anaishunter]

I have an Ocrevus infusion tomorrow. I'm actually excited for it because it's been 13 months since the last one and I know I'm currently exposed to relapse with B-cells having bounced back. So can't wait to get this under control again.

Today, I'll make sure I drink a lot of water. and no late night or drinking tonight. I've signed up for a Yoga Relaxation class instead.

If all goes well like last time, I'll drive myself to and back from the hospital and Sunday I'll have a steroid high. Nothing to complain about.

[rjoneslaw]

congrads on getting back on the bandwagon

[jimeka]

Hope everything goes well. Enjoy your steroid high on Sunday 👍

[erash]

Hope all goes well 🤞🌈

[Jackjosh]

Hope all goes well mine is monday unless they cjange it

[timothy228]

had my 3 rd one a few weeks ago all good wish i had gone sooner and will get the next in 6 months i sleep during the whole thing go get em!

[kdali]

I hope it goes well! Are you restarting the infusion with 2 half doses since it’s been so long?

[anaishunter in reply to kdali]

Trying the 1/2 dose as the full dose seems to be too much for me. Ocrevus depletes not only the B-cells but also the T-cells. Started blood test every 2 months after full dose at + 6 months. And even at 10 month, the neuro hesitated to order another round of Ocrevus. He offered me 3 choices: (1) full dose with all the risk of a depleted immune system, (2) 1/2 dose, or (3) other treatment.

Ocrevus works for me - made my ms dormant in 6 months after the 2 first 1/2 doses (MRI check). So I decided to go for the 1/2 dose.

I'll do a blood check in 2 months to validate whether it depleted all the b-cells.

This is only my 3rd round of Ocrevus since July 2018. I've not had any reaction to it whatsoever. Yesterday, they gave me the standard benadryl + steroid support.

[Tazmanian]

Congratulations

[anaishunter]

All went great! Slept through most of it. Then waked up and drove myself home.

waked up this morning like nothing happened.

[twooldcrows]

so glad it went so great for you ...i really enjoy being on it ...feel so much better and no more shots is the best thing ...congrats on it ...love and much happiness...take care and enjoy life...

[mm1527mm]

Praying for a smooth infusion!

[Tazmanian]

👍

[carolek572 CommunityAmbassador]

I hope that all is still well, anaishunter