Update on my infusion fiasco: For all who... - My MSAA Community

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Update on my infusion fiasco

Allen5280 profile image
11 Replies

For all who suggested that I made sure to speak up

I alerted my doctor to this on the 21st of May at my appointment and I have been in contact with Gentech already. Speaking with both is how I found out this was not good. They seemed to be very upset by the whole thing. I also had an appointment prescheduked for my July infusion but I called the infusion center and spoke directly with the infusion person responsible for all of this. I politely talked to him about the situation and for him to be expecting the call from Gentech (yes I got my bio places mixed up I'm always getting stuff from mutiple pharma companies because of being on past emts I get confused) so this is all already being handled. I'm wouldn't ever just let something slide once I know it's not being handled correctly.

As for my reply problems I have problems with all internet stuff when o get over my data allowance. It allows me a very little (about one week a month) and then to snail speed. I have problems with everything so I'm just thinking it's that if no one else is

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Allen5280 profile image
Allen5280
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11 Replies
rjoneslaw profile image
rjoneslaw

good 2 no u got it handled

Doubled51 profile image
Doubled51

Good for you Allen5280 . Sometimes we just have to be persistent and not give up. Glad things are working out for you.

Donnie

Allen5280 profile image
Allen5280 in reply toDoubled51

Thank you Donnie

carolek572 profile image
carolek572CommunityAmbassador

No, Allen, this stuff doesn't happen to only you. Things have a way of working themselves out. :-D

Allen5280 profile image
Allen5280 in reply tocarolek572

Yeah, it just wears me put having to up through more hoops than I have strength to. I know it will all settle back into place sometime soon.

carolek572 profile image
carolek572CommunityAmbassador in reply toAllen5280

I know what you mean, and I hope that it settles back into place soon! :-D

falalalala profile image
falalalala

You're taking care of business regardless of any glitches and that is good.

Give yourself some credit!

Allen5280 profile image
Allen5280 in reply tofalalalala

Issues with regular prescriptions not being available to me. Doctors office was blaming the pharmacy. Pharmacy was blaming the doctors office and insurance at times. So finally o switched pharmacy and wouldn't ya know it, first order without three meds. I had backups from script changes of two. Worst part was drs office was closed last week, I think due to emergency epidemic training drills. So I've been without my primary muscle relaxer for almost two weeks. With all this stuff going on and extra stressors. If I survive until my cyclobenzaprine gets here (hopefully today) things will be better. When the stuff hits the fan! I think I may feel like a champion of I get through this.

falalalala profile image
falalalala in reply toAllen5280

That is a giant hassle.

You will get through it.

Juleigh21 profile image
Juleigh21

I hope your next infusion is done correctly!

Are you connected to your WiFi when you’re home? You shouldn’t be using data at home. At least I don’t. My 3 girls are on my plan. Right now we’re on reduced speed when not connected to WiFi b/c 2 of them abused data this month. Oh well. Eventually they’ll learn b/c I’m not getting more data.

goatgal profile image
goatgal

Good news about resolving the infusion problem!

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