Hello to All,
Has anyone taken the drug Amantadine, brand name Symmetrel, to treat MS fatigue? I’ve been on it for a few days but unfortunately I had a pretty bad adverse reaction today and I will have to stop taking it. I’m interested to know if you had any side effects while on it or withdrawal issues when you stopped taking it.
Many thanks!
Didn’t do anything for me, so I quit it. Ken 🐾🐾
Hi Ken, thanks for you reply. Did you have any sort of issue when you quit it? For me it’s the opposite - it was surprisingly effective on ALL my symptoms at first but then I started getting kidney & heart pain after taking it so I tried to skip a dose only to have the fatigue come back with a vengeance. Then I took the dose and had a pretty awful neurological reaction to it.. so now I have to quit taking it but I’m afraid my MS symptoms will strike back..
Didn’t have anything change when I started or quit. I just didn’t notice any change and hate taking pills 💊 unless they are helping. We are all different, doing vitamin D3 and having it monitored seems to help. Hope everything works out 🙏😉🐾🐾 Ken
We are indeed all different! It’s almost like we all have the same diagnosis but the disease process behind each diagnosis is different, or at least there are several possibilities. I’m also diagnosed with a rheumatological disease called Behçet’s so it could very well be because of that.
I took it for 3 weeks at a time and then one week off to become sensitive to it again. I learned about how people take it from a Parkinson’s group. No reactions, I stopped taking it because I did keto and didn’t need it anymore, but it didn’t give me that much energy anyway and I don’t think any improvement in my walking speed.
I took it for a few months, but it didn't help me at all, When I quit
taking it, I had no reaction or side effects.98
i took it for about a year,it helped with the fatique for awhile but then my back had some terrible itching on my back i couldn't get rid of and the dr took me off of it and it immediatly stopped
Insurance and medication. 
The Migraine Journey!
Anyone else have this?
Does anyone use Tru Niagen?
