G’Day, beloved ms family. All are well, not to much if any pain or emotional trauma basically just another day with your incurable, chronic, progressive illness, that we call our life with Relapsing-Remitting ms (RRms).
I have noted recently in the world, not our family, that people are under the impression that they are owed something, deserve because of who or what they are. I would strongly suggest that I and “YOU” (yes, I know my grammar is incorrect) DERVE NOTHING. I would suggest that what is happening to us, what we go thru are from our own poor decisions, or merely because.
“YOU” & I have , because. Because somebody has to have it it is part of the human condition. We are all human and with the correct line-up of events, we get ms. We were just in the right position at the right time to get ms. If I had been diagnosed (Dxd) 25 years ago instead of 20? years ago who knows where I might be. My stars aligned so here I am. Decisions that are made every moment of every day determine my life. I am not entitled to any special treatment We should ask for, no demand. Courtesy, but we also should give it whenever we can. Because we are disabled does not mean that we can show consideration to others. It is not too much to hold a door open, to reach for something on a shelf beyond theiries reach. It does not take from my or your day to be considerate and polite. I will tell “YOU” a secret, it makes “YOU” feel good doing for others instead of always expecting something to be done for “YOU” If “YOU” are doing the doing, that is control in your hands, and that can feel so much better.
If “YOU” find yourself working for something, make the effort. It is quite okay to slow down. To change your timespan. This is your ms life. There are no guidelines that have to be adhered to, no rules to be followed. Merely to work at the best of your ability to achieve what “YOU” want to achieve. Make your life as purposeful and pleasurable as “YOU” want it to be. “YOU” may not realize it at first, but “YOU” are in charge, “YOU” make the rules and “YOU decide how (your life) the game is played. Find and make every advantage to suit “YOU”. Take your Disease-Modifying Therapy (DMT), wear your protective underwear, nowhere the toilets are wherever “YOU” go. Be aware of the space that “YOU” are in. Do NOT live your long life totally at somebody eases whim. “YOU” are still a strong human being, with a will. Do not be rude, but do stand your ground. Doing these things will help “YOU” have the will to go on to achieve what “YOU” must.
“YOU” may not deserve special treatment, but “YOU” also do not deserve to be discarded like some broken toy. Make an effort, work at your goals. Have goals.
Royce (your ms writer)
achieve what you can, no matter what, work for it
