G’day dear family. I hope we are all well and had a good restful nights sleep. This may come as a shock to some and be very obvious to others. We have a chronic incurable medical condition. How this affects us and how we live with it, is up to us. Nobody else, “YOU” are the one person alive that decides how this illness affects “YOU”.Understand that I am not a Doctor of any sort or a therapist. I (Royce) and I am merely saying that “YOU” have choices in life and with this illness.
Is your choice to be happy to live within your means and abilities, or is your choice to never leave that cold dark dungeon of despair. Only “YOU” can answer this, and your decision decides what “YOU” deserve, how “YOU” are going to live with this illness. Wether or not “YOU” go to bed at night content with the way that “YOU” lived your day and perhaps how good the next one might be. A successful life with this illness takes small steps. Many small steps repeated and built upon until “YOU” realize that “YOU” have accomplished a goal or a dream. Start small, realize that this illness has pushed “YOU” back from where “YOU” once were and start rebuilding yourself.
A few years back I bought a chin-up bar for my office. It sat there for a long while, gathering dust and hanging up clothes. I looked up at the gym pull-up bar and over heard somebody saying most people can not even do one. Me being me, I accepted the challenge and dusted off my home chin up bar. Small steps and in the last week my notes show easily 50 a day and 12 at a time. I will go higher, and when I achieve that milestone I will do more. Hopefully never stopping and trying for just one more. The goal is never achieved there is always one more, and what I did, I did. I deserve it because I made the effort, I struggled, I failed. But what I achieved I did, it was all me, my success. I do not think that everybody wants to do chirrups, but I bet there is something that “YOU” really want to achieve. Why do “YOU” not start working to achieve your dream. Do it not to prove anything, not because somebody says too or that “YOU” can not. Do it because “YOU” want to. Fail at it several times, then shake yourself off and try again. Anything worth having is worth effort.
I never thought self injection was something I could do. I tried it and have the scar to prove I could not do it. For years somebody else needled me in the bum. Somewhat embarrassing, but then so is ms. I was home alone and it was needle time. I am VERY strict on my medicine schedule and I had to give it to myself. I had grown a little fat on my belly so in it went. Still terrified me, but it had to be done, so I did it. I have done several more over the years. I still dislike needles but it was what had to be done. If I deserved to still walk and stand I had to make the effort. I had to try, stretch myself and do what had to be done.
Me, not anybody else, ME, and the same hoes for’YOU”. If “YOU” want to have a reasonably happy life, “YOU” my sibling have to make an effort. Stretch your boundaries. Break down the walls that hold “YOU” back and look into the blue sky above “YOU”. Our illness asks a lot, why do “YOU” not start demanding something back?
Royce (the ms writer)
I want, and because I want I will make the effort to get it, why don’t you?
