Good Saturday Morning, today it will be another scorcher as of course it is summer and the desert is having a heatwave, again. Or is it still I can never decide which. I hope everybody had a restful and refreshing nights sleep. As always your ms gremlins were calm and let “YOU” rest. That I feel may be the best we can hope for as nobody has made billions with a cure. They only make 10s of millions with their treatments. “YOU” know the ones we all love so much, Disease-Modifying Therapy (DMT). No cure for us, YET. We just get Modifying Therapy for a few more years.
Onto today's subject. Coping. Remember this is from my experiences over the years, 20+, it is not in lieu of your trained medical professional's advice. I am not now and never have c claimed to be one of those.
A diagnosis (Dx) of ms can be difficult. Very difficult. As I remember I cried a lot, a hell of a lot. I do not remember if it was because of what had just been taken from or the extreme betrayal by family. I think she might chime in and claim her innocence. I claim to not remember or care which and that was long ago I do not really care either way. Yes, what “YOU” think “YOU” may have had “YOU” may not have anymore. Friends, family and spouses may disappear at the first signs of trouble. This hurts, but it DOES happen. Ask the societies what the divorce rate for ms people is. In sickness and in health usually is not taken seriously anymore. This is the reality, we must look to the future and let the past go. NO not tomorrows future far ahead. “YOU” have many years of life ahead of “YOU”, start planning on how “YOU” want it to be. YES” without a doubt “YOU” have a future, this is not a fatal disease, it is chronic. I am not sure which is better, but I know that I am not in a serious hurry to be put in the ground and ms is very livable. It does have aches and pains. More than your fair share of embarrassments in my opinion, but very little that can not be learned to cope with.
At first, it does seem overwhelming to some. I like lists, so the first things I do is make a list. DMT, that one is easy, Ocrevus because it is the strongest, if something stronger comes along, tell me and I promise to tell everybody else, I will not keep a secret on this. Diet and exercise, not quite as easy but I would think heart-healthy for both counts.
“YOU” will not die of ms, but clogged arteries can really screw up your day. Do “YOU” see this? A few pretty easy steps and “YOU” have solved some of your immediate problems. The others “YOU” will solve as they come along. Remember crying is allowed in ms. If “YOU” feel the need, let them flow. Warn those around “YOU” and tell them not to worry. Children I understand are great for a consoling shoulder, I prefer my joint dog as I have no children.
Other issues as driving money and your future will be solved when the time is right I never expected to write a 644+ page book but look art me now. Things will work out for “YOU” in their own time as “YOU” let them. Try not to solve every problem today leave some for tomorrow and do not worry about it so much, “YOU” can cope with this, honestly
Royce ( your ms writer)
read this again, some of your answers are already here, YOU CAN COPE
