Unnumbered post Every morning on my desk 28 Jul 2020

[RoyceNewton]

G'day my beloved ms family, I hope everybody had a got nights sleep and is in little pain or anguish. I woke up and instead of coming to my computer I turned on the news. Stupid mistake, I know better but we all make mistakes.

I turned off the television turned on Alexa and listened to Bob Marley, 3 little birds several times and thought about my 6 months in St Lucia in the early nineties. Good times, sad that I was too young and stupid to take full advantage of it. Those days are distant memories. Very fond but that was long ago. I also read a card that my mothers next-door neighbour gave me a few years ago.

One Day at a Time, Whatever the goal we are pursuing, no matter how rugged the climb, we're certain to get there by trying our best, and taking one day at a time. Forever is hard to imagine, The future may seem far away, but every new dawn brings a wonderful chance to do what we can on that day." no more, than what we can do, and if stumbling to the toilet then back to bed is all "YOU" can do that is okay.

This, our ms life it is NOT a race. There is no prize for she\he who finish first. Take your time, go a little easier on yourself. Be kind and forgive others. Be extra kind to yourself. "YOU" did nothing wrong, "YOU" are NEVER to blame for this disease. Do not look at it as a curse put upon "YOU". I think it is much easier to look at it as a trial that "YOU", we all must bear. Maybe like the old Greek stories of heroes facing insurmountable odds. That is nicer, makes "yOU" feel perhaps a little less helpless and pointless. I know that I must write so that one day that one person who needs to see these words sees them, and they smile and say YES I CAN.

Royce (your ms writer)

who knows it could be you

[carolek572 CommunityAmbassador]

Today is always a good day! Why? Because I woke up, Royce! Keep Smiling

[Amore55]

Hello, Royce! Keep the writings coming, you have good to share! I hope you have a marvelous day, be blessed in whatever YOU choose to do! Love, Kelly

[Violonchelo]

👍

[agapepilgrim]

Royce you are blessed with positiveity. I sing the song ,”one daY at a time, dear Jesus,” and I have fought a good fight, won many a battle (abusive parents, sexual abuse, childhood diseases, fractured neck at 3 and pain every since, moved 27 times by graduation in ‘64, so many health issues but parents didn’t go to doctors - continued into adulthood, still taking one day at a time Finally dx with MS and told by my comorbidities history had it for 56 years, amazing how I survived, how did I, you can keep going. But, my point, Royce,?is this: I am almost 74 and 70 of those years spent in physical pain, a lot of emotional and mental abuse until last 20 years, and doctor experimenting with meds that had a lot of bad side effects. I AM TIREd, bone-weary fatigue. My daughter says, hold on a bit longer, it’s because you have had pneumonia for a month. That causes bone chilling fatigue and deep depression, incessant coughing, etc. (I get pneumonia either once a year or every other year and latest CT scan shows severe scarring. My PC said he was making appt for a pulmonologist but after 3,weeks he hasn’t yet (my typical experience) But he did prescribe Albuterol inhaler cost $45 cause my insurance doesn’t cover that particular one. 3 years ago I would have called doctor and asked for one that is covered BUT I am too weary. My records at my hospital system and neurologist were hacked last month and I’m too tired to deal with that. Yes I am venting. I would like to take one night at a time and just sleep, but it’s 4:30 and I’ve tried 3 times.y right eye is so blurry I have it closed. Maybe I should stay off this forum. I did for awhile. I’m too depressed and too tired of taking even one hour at a time. Sorry Royce for dumpingbonnyourvpositivity advice. I’m just too fatigued to take one day at a time. It started bad because I had the wrong time in my MS brain for my long awaited eye appt for my blurry vision. I thought it was 2; was getting ready to walk out of door at 2; husband looked at calendar and said appt was at 1 👹. So next available appt is January for my blurryvaching itching eyes. Nope, not one day at a time. Ya’ll pray for me, please, you hear? 56 years of f MS, 70 years of neck pain, 65 years of stomach - yep,?one hour at a time.

From Syncope pilgrim (one of my comorbidities 😳) who is broken down agapepulgrim

[RoyceNewton in reply to agapepilgrim]

You seem to be a very brave woman. A tough life but you are living it. Stay as well as you can.Always much love