Plasmaphorersis

[palomino27]

I wondering if anyone here has done plasmaphorersis for their MS? My nuerologist does it sometimes for her PPMS patients which I am. Especially for patient with really bad chronic pain issues like I have from the whole host of other autoimmune conditions that I have like POTS Dysautonomia and small nerve fiber nueropathy. I've already done the first 3 week trial and the results we good but not great. My nuerologist thinks I should continue with it based on my pain was somewhat less and my walking was a bit better as well. The trial was 2x a week and now will be once a week for 8 more weeks. If that goes well I will probably be on it for life. It takes me over three hours to complete because if they put the rate to high and remove my blood to fast I faint because of the POTS which happened my first treatment.treatment. it's probably the most intense treatment I've ever done.

[jimeka]

I have not heard of using plasma exchange for ms. I hope it works for you and it really helps your mobility. Blessings Jimeka 🤗

[kdali]

My only experience with it is as a nurse.

[palomino27]

My MS doctor only uses plasmaphorersis for her patients who are PPMS and have other autoimmune conditions similar to mine. Insurance companies won't really approve it just for MS. She has said those who have a lot of trouble walking are helped the most by it she says from her experience. Some it can improve GI symptoms too.

The problem is when ones plasma is removed along with the bad auto-antibodies in the plasma part of the blood, your body remakes those eventually as well. So it has to be done atleast once a week.

[BettysMom]

Correct spellings: plasmapheresis, neurologist, neuropathy

[TDonahue58]

Good luck with your therapy! 🙏 for you

[Cutefreckles72]

If it helps with walking, I need to talk to my neurologist. My walking is painful and hard. Thank you for the info.

[pamgarner]

wow,thank you for doing this trial:)let us know