Update on my venture: The infusion went... - My MSAA Community

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Update on my venture

TexasLawman profile image
28 Replies

The infusion went well. I opted out of the pre-meds, but the infusion went off without a hitch. Felt fine during and afterwards and stopped at a BBQ joint I saw on Diners, Drive-Ins, and Dives. It was good. The nurse was very attractive though I suspect she was around 12 years younger than me. I still flirted with her because I am single and not quite yet ready to throw in the towel. haha She seemed receptive and told me she would be in every 30 minutes to increase the flow. She came in more often than that and I took the opportunity to talk to her. We talked trash about our kids, talked about our schooling and our last relationship. We traded some slightly off color jokes and laughed. The infusion went by too fast. I only hope she is my nurse when I go back. I might bite the bullet and ask for her number even though she lives in Dallas and I live in Fort Worth and that would be considered long distance to most people. :)

The next day was different. I woke up with heavy legs and trembling in my whole body. I felt like I was laying on a motel bed that someone inserted a quarter! Today, I am feeling better and hope to see improvements soon.

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TexasLawman profile image
TexasLawman
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28 Replies

Haha 😆

Good for you!

Sounds like you are doing good!

A “live-in-nurse!” (Double-Score!)

Keep us posted and take care, “TexasLawman”

in reply to

Which diner did you visit?

I love that show....d.d.&d...

Ever been to the “stockyard “????

TexasLawman profile image
TexasLawman in reply to

Sonny Bryant. I’ve been to the stockyards here in Fort Worth though I’m not a fan of rodeos.

greaterexp profile image
greaterexp

I hope you recover quickly.

TexasLawman profile image
TexasLawman in reply togreaterexp

I’m back to normal today.

erash profile image
erash in reply toTexasLawman

I’m curious about your normal? You seem like a pretty extraordinary guy 😉

TexasLawman profile image
TexasLawman in reply toerash

Thank you, but I’m just a simple guy who happens to just be stubborn and mean. Lol

CrazyCatWom profile image
CrazyCatWom in reply toTexasLawman

I'm with you on the stubborn part. I told my neurologist about how I was told when I was first diagnosed, that I would be in a wheelchair by the time I was 40. My neurologist said he hated it when patients were told that. I replied I didn't see it that way. It triggered my stubborn streak. So on my 40th birthday I climbed to the top of El Morro-- a sandstone bluff that is over seven thousand feet. No wheelchair, no walker, not even my cane. I did have a 40 pound camera bag over my shoulder and two 8 pound cxameras around my neck! It took 11 more years before a wheelchair even briefly became a part of my life.

TexasLawman profile image
TexasLawman in reply toerash

My normal is all over pain, numb feet, unsteady gait, and some fumbling speech.

greaterexp profile image
greaterexp in reply toTexasLawman

That was quick! Hurrah!

daveh121 profile image
daveh121

Sounds like a good day especially since you are back to normal.

rjoneslaw profile image
rjoneslaw

Congrads

erash profile image
erash

So, they allowed u to skip the Benadryl and steroids. I’m 😯 surprised

TexasLawman profile image
TexasLawman in reply toerash

It’s my choice what I do and don’t take.

pamgarner profile image
pamgarner

the pre meds are the best part(tee-hee) how do you know what you are missing,it might have eliminated so of the yuck the next day.glad you are back to "normal"and things went smooth.everyone is different,glad yours was a pretty good experience

bxrmom profile image
bxrmom

Glad everything went well and you are feeling well again.

IFwczs profile image
IFwczs

Glad it went well and you hit it off with the nurse. The Ocrevus nurse I became friends with kept being my primary nurse for a couple of years (she doesn't know yet I am not planning on coming back). Surprised like erash they let you skip the premeds.

hairbrain4 profile image
hairbrain4

Glad it all went well. I think I will try to forgo the premeds next time too. Didn't know they would let you do that.

TexasLawman profile image
TexasLawman in reply tohairbrain4

You are the boss. They can strongly recommend but can’t force you.

4myms profile image
4myms

May I ask what medication you are taking? I've been on Rituximab infusions for 2 years

TexasLawman profile image
TexasLawman in reply to4myms

Ocrevus. Only one I’ve tried.

4myms profile image
4myms in reply toTexasLawman

I’m not familiar with that med! Hey as long as it works!!!

mrsmike9 profile image
mrsmike9

You say dog, you!!! 😉

mrsmike9 profile image
mrsmike9 in reply tomrsmike9

SLY!!!!

TexasLawman profile image
TexasLawman in reply tomrsmike9

Thx for not saying “old dog!” LOLOLOL

Tazmanian profile image
Tazmanian

The pre meds might help you feel better after the infusion, but they will make you tired

kdali profile image
kdali

Glad it went well and you didn’t have a reaction.

carolek572 profile image
carolek572CommunityAmbassador

Sorry for this late response, TexasLawman but this was you first Ocrevus infusion? I am asking because they usually administer the first infusion 1/2 dose at a time. The next half usually is scheduled 14 days later. So, you have a wonderful opportunity to see that nurse again, and soon! Keep Smiling :-D

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