ms is a Central Nervous System (CNS) disorder, the CNS is your brain and spinal cord. Your arms legs and eyes are peripheral nerves not CNS. I may be wrong on the eyes but I do not think so. Feel free to prove me wrong I can always stand to learn something new and my ego is not that fragile. ms can and does act anywhere that it wants in that system. Therefore “YOU” as somebody with ms will have a huge and variable range of symptoms. Some mild some very painful and disabling. The rate at which this happens is also unknown. Nobody can say at year thirteen your legs will stop working and at year twenty-four forget about erections or vaginal lubrication. Sorry it is not quite that type of illness. Actually nobody can tell “YOU” much about the future, only that it is progressive. It is supposed to get worse, but when where and what is anybodies guess. That is why we take Disease Modifying Therapy (DMT) to slow it down. Never expecting a cure, merely to get worse slower. Same is true for diet exercise meditation positive thinking reading\learning not smoking drinking less. Never to cure, to slow ms down. Importantly do not just believe me. I might be wrong. learn for yourself everywhere that “YOU” can. NO, “YOU” have ms an incurable progressive disabling lifelong illness, learn about it. It is not all bad, frustrating and annoying most certainly, but not all bad. Not even mostly bad it just takes looking at things in a very new and different way.
I might suggest instead of looking at your life as a straight line, a to b to c all the way to z, that “YOU might look at it as a to b to r to s to e. Yes back to front topsy turvy and all mixed around. Who knows what tomorrow brings, who knows what four minutes in the future brings? Throw away your expectations, make your dreams flexible. Expect disappointment betrayal loneliness wrong advice. If “YOU” are ready for these things if (and I do mean IF) they do occur “YOU” will be better able to accept the challenge.
“YOU” like me have ms in one of its forms. There are challenges, there will always be challenges. If there are no challenges “YOU” are most likely dead and I do miss “YOU”. Not every challenge is climbing Mount Everest, some are just getting out of bed on a cold morning before “YOU” urinate on yourself. Do not despair stand straight, pull your shoulders back and look straight ahead and move forward. always forward. That person sobbing endlessly in that cold dark corner is not “YOU”, “YOU” are much stronger than that. “YOU” have family, we are your family. Take my hand and walk with me, “YOU” need never be alone. As a family, we can do this together, this illness need not beat us when we are together as one family and the occasional tear or sadness is quite okay. It is normal we are not perfect.
Royce
walk with me onwards, here take my hand
