My dentist' assistant has MS as well! - My MSAA Community

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My dentist' assistant has MS as well!

bxrmom profile image
8 Replies

I was at the dentist yet again yesterday to have a tooth rebuilt and a temp crown put on. While I had to have something on the side of my mouth while I was waiting for the dentist to come back, I was chatting with the dentist's assistant and she asked me if I worked. I told her I couldn't due to a bad relapse from my MS that left me really dizzy. She said she had MS too! She asked what DMT I was on, and I explained to her that I was on Tecfidera because Copaxone was leaving me with no more injection sites even when I went to the 3 times a week dose. She said that was her first med as well and she had scars from it that she switched to Ocrevus and she loves it! I told her I was going to be talking to my Neuro about it when I see him next month.

Small world! We didn't get to chat for too much longer as the dentist came back to finish up getting my temp crown ready and in place so that I could finally be on my way.

Jessie

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bxrmom profile image
bxrmom
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8 Replies
rjoneslaw profile image
rjoneslaw

I was on T and I switched to O in June 2019

bxrmom profile image
bxrmom in reply to rjoneslaw

How are you feeling since switching rjoneslaw ?

rjoneslaw profile image
rjoneslaw in reply to bxrmom

I'm feel good I have seen improvements. My pt has said he has improvement with people he has worked with how are on it as well.

bxrmom profile image
bxrmom in reply to rjoneslaw

That's great to hear! I hope that it continues for you! I will definitely post an update after I see my Neuro next month (day before I get my permanent crown on).

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Isn't it amazing when you meet someone else with MS? I have met 2 others here in my town. It felt to like we shared a bond that no one else understands. Hope your dental work goes well and you are not feeling allot of pain with it. I had my first infusions of Rituxan last summer, so far I'm doing fine.

IFwczs profile image
IFwczs

Jessie, like rjoneslaw , I switched from Tecfidera to Ocrevus. I have a feeling Tecfidera didn't do anything. As my neurologist says, Ocrevus is the only MS DMT to slow down disability progression (and he doesn't say much). I hope you switch to Ocrevus.

Scamp56 profile image
Scamp56

Been on Ocrevus for 3 years. Neurologist says that UK studies show it may be beneficial to those of moving into the secondary progressive stage. 20 years with MS. No real issues after the first two years. Was on copaxone for that whole time But at years 13 and 14, foot drop and leg weakness started. After too many falls and other issues it was impossible to keep working.

Make sure you ask Ocrevus for access to their financial assistance group.

pamgarner profile image
pamgarner

you can find someone with helpful advice anywhere:)

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