We're all different with what we need, and what we need to know about our MS in order to deal with it. This might seem strange to many but in my case, my MS specialist did not volunteer some key information and I did not ask either. Thinking about it this morning, there's no reason right now for me to know:
(1) RRMS or PPMS or whatever else MS: when reading about it, the distinction between all of them is still nebulous. I'm happy to be on an aggressive DMTs that treats both (too early for me for SPMS).
(2) EDSS: I don't need to know and I don't want to know. It's early for me. My neurological test is not perfect but I have no disability and I don't care about whether I'm 0, 1, 2 or whatever. Period.
(3) Prognosis: on this one, I knew that if I asked, I would get a half answer or no answer. No need to try to answer the unanswerable. MS is a new passenger in my life journey and it (he? or she?, how do you call your MS?) will take me where it wants, but sometimes I will be the one with the hands on the steering wheel (hopefully).
I thought it would be harder to deal with the above uncertainties. It's actually not.