In denial

[Tracelr]

Hi

Doing well today

I just realized heat is the problem

For increase symptoms

Few months ago .

Some would ask sun bothering you

I would say no. Couldn’t fingute our why always asking that about the sun

No one mentioned it’s the heat lol

I love the sun hot baths and showers.

Few months ago fingered hot bath is Debilitating

So I take cool bath now I can take bath with out assistance

So if anyone one else hasn’t been

Specifically told that it’s the heat.

Things can be adjusted keeping cool

All the time..

in morning I go out side in tank top

To cool body from nights sleep

Sit outside for 10 mins .

I live in Missoula Montana .

Helps me to start the day cool

[jimeka]

Hi and welcome to the forum. Thank you for sharing. I have the same reaction to heat, but the cold is so painful. So it’s a choice of two evils, pain or lethargy.? Nice to meet you, Blessings Jimeka 🎄

[Tracelr in reply to jimeka]

Thank You

Luke warm bath just not over

70 or so

[Kenu]

That’s they way they first started testing you for MS was putting you in a hot tub 🛀. It would set off an exacerbation! I hot 🥵 bath just wears me out and above 80 degrees I have my cooling vest on 👍🙏😉 Ken 🐾🐾

[Tracelr in reply to Kenu]

Wow interesting!

What year did they do that in ?

Nice to meet you

[Kenu]

From what I read was clear back in the 50’s. Was one of the first things my neurologist had told me. Probably about my sixth year into MS we went with some of our friends and camped at a hot springs. They talked me into trying it out, what a mistake that was. Barely made it back to my camper and was burned out rest of the day and night. Luckily felt better in the morning. I have adjusted to a warm shower 🚿 now. 👍😉🐾🐾 Ken

[Tracelr in reply to Kenu]

Shower is good but I’ve declined in standing have those suction hand rails they move ..

[Raingrrl]

Welcome to the group Tracelr ! Heat is my nemesis. I had an episode of severe vertigo in Oct. because of getting overheated. I have to avoid things like hot showers and baths, saunas, hot weather especially with high humidity, etc. Its just of a number of things I’ve had to adjust to because of my M.S. symptoms.

[Tracelr in reply to Raingrrl]

Vertigo is that a lovely one

I don’t get as often as I did in the beginning..

I think it’s because of the alcohol I did drink at one time

the alcohol symptoms just didn’t leave so act and feel drunken with out drinking

Any one pass out from getting to warm I have 3 times this year

Just comes on me mostly nights

When brushing my teeth in bath room feel suddenly hot ears ring

Iam going down

[Tracelr]

I put things together not so well at times ..

So your story about hot springs

Reminds me my son wants to take me to hot springs omg

I won’t be going ..things like that seems I know no direct sunlight

Hot bath didn’t put that together with hot springs lol hence HOT..

Like I have to learn everything again while feeling in my head is intoxicating

[Midgey_Midge06 in reply to Tracelr]

If i may ask when where u diagnosed? I have always had issues with sun. I burn like crazy. But ya taking a hot shower wud get me going in the morning. Not so much now! I only shower at nite before i go to bed. After year 2 of being diagnosed i started having issues with the cold. What a shock that was! Now i dream of a place somewhere with just the rite temp.... 💜

[Tracelr in reply to Midgey_Midge06]

Palms and soles my feet numb woke up with 2006

Random spots on my body numb

Starting falling down in 2008

Be cause of drop foot

Could walk less and less distance

Diagnosed in 2011

[Tracelr in reply to Midgey_Midge06]

Sun didn’t bothered me in less sitting direct sunlight

But just Realize this summer

That heat was not good for me

All symptoms that I incurred in 2006 and up to my diagnosis All Stayed as of now I can fold laundry walk with a walker

Wheel chair when I leave the house. Can not cook clean

Or anything else that requires

Standing independently

Can carry stuff.

It could be worse

[Midgey_Midge06 in reply to Tracelr]

Did they say if u have PPMS or RRMS?

Sorry i dont mean to be noisy. Just trying to get to know u.

I was diagnosed march 10, 2014. After a head injury the year prior is wen all my symptoms started. But i did have certain things i can look back on now that cud have been clues but never thot much of it. Brushed it off

[Tracelr in reply to Midgey_Midge06]

Rms Yeah I understand what you mean i brush off I have most things to you injuries pain stuff like that and say oh that’s just the MS don’t worry about it

[leking1]

Welcome, Tracelr, heat is one of my worst triggers. Lukewarm baths, showers, garden outside at dawn and at dusk, don't use the oven a lot, because the blast of heat when you open the oven door! I had to move from Florida, back to my home state of North Carolina because of the heat. My Neuro there Strongly advised it! I love the Sun!

[Tracelr in reply to leking1]

Sun lover whole life

Shower chair for me extra energy burner.. just take bath use shower nozzle for very warm rinse off

Works so well for Me

Lived in Montana moved to mo to help my mother she passed away

At young age 64 2010)

We now moved back fo Montana

The weather here works for me

Heat and Humidity doesn’t work for me ..

Nice talking to you first ms forum group I’ve been in

[leking1 in reply to Tracelr]

Nice talking to you! This is a great forum. So glad that you are with us!

[Tracelr in reply to leking1]

Ty

[carolek572 CommunityAmbassador]

Welcome to this forum, Tracelr Heat is problematic for me as well. The cold is a problem for me as well. But I will not give up my hot shower. I have a shower chair to assist me. I freeze when I step out of the shower, though. Forget about taking a bath ~ hot or cold! I cannot catch a break either way. I look forward to hearing more from you in the forum. Keep Smiling!

[Tracelr in reply to carolek572]

Cold problem to same as heat ?

Very cold my body will lock up

Tightens and shake not always just few times it’s weird

I do not experience any pain from this ..

Thinking should I hope not something that will come .

Then again I have high pain tolerance. When I injure my self .i don’t Realize unless bleeds or bruises show up on my knee

Don’t remember the injuries or how

Fortunately it’s not often

[carolek572 CommunityAmbassador in reply to Tracelr]

No, no pain when too cold. Just a lot of stiffness and muscle spasms, especially with my left leg. The heat will make me lethargic and tired. My phalanges (all of them) are no longer sensitive to hot or cold. I am careful of the stove because I can barely feel heat until its too late, and my arm/leg starts to convulse. Isn't this fun? Not.

[Tracelr in reply to carolek572]

Hugs 🤗

[mm1527mm]

Heat really bothers me also. My first episode which got me diagnosed happened after i was in the heat for a long time.

[Tracelr in reply to mm1527mm]

🤗 hugs