Hi and welcome to the forum. Thank you for sharing. I have the same reaction to heat, but the cold is so painful. So it’s a choice of two evils, pain or lethargy.? Nice to meet you, Blessings Jimeka 🎄
That’s they way they first started testing you for MS was putting you in a hot tub 🛀. It would set off an exacerbation! I hot 🥵 bath just wears me out and above 80 degrees I have my cooling vest on 👍🙏😉 Ken 🐾🐾
From what I read was clear back in the 50’s. Was one of the first things my neurologist had told me. Probably about my sixth year into MS we went with some of our friends and camped at a hot springs. They talked me into trying it out, what a mistake that was. Barely made it back to my camper and was burned out rest of the day and night. Luckily felt better in the morning. I have adjusted to a warm shower 🚿 now. 👍😉🐾🐾 Ken
Welcome to the group Tracelr ! Heat is my nemesis. I had an episode of severe vertigo in Oct. because of getting overheated. I have to avoid things like hot showers and baths, saunas, hot weather especially with high humidity, etc. Its just of a number of things I’ve had to adjust to because of my M.S. symptoms.
If i may ask when where u diagnosed? I have always had issues with sun. I burn like crazy. But ya taking a hot shower wud get me going in the morning. Not so much now! I only shower at nite before i go to bed. After year 2 of being diagnosed i started having issues with the cold. What a shock that was! Now i dream of a place somewhere with just the rite temp.... 💜
Sorry i dont mean to be noisy. Just trying to get to know u.
I was diagnosed march 10, 2014. After a head injury the year prior is wen all my symptoms started. But i did have certain things i can look back on now that cud have been clues but never thot much of it. Brushed it off
Rms Yeah I understand what you mean i brush off I have most things to you injuries pain stuff like that and say oh that’s just the MS don’t worry about it
Welcome, Tracelr, heat is one of my worst triggers. Lukewarm baths, showers, garden outside at dawn and at dusk, don't use the oven a lot, because the blast of heat when you open the oven door! I had to move from Florida, back to my home state of North Carolina because of the heat. My Neuro there Strongly advised it! I love the Sun!
Welcome to this forum, Tracelr Heat is problematic for me as well. The cold is a problem for me as well. But I will not give up my hot shower. I have a shower chair to assist me. I freeze when I step out of the shower, though. Forget about taking a bath ~ hot or cold! I cannot catch a break either way. I look forward to hearing more from you in the forum. Keep Smiling!
No, no pain when too cold. Just a lot of stiffness and muscle spasms, especially with my left leg. The heat will make me lethargic and tired. My phalanges (all of them) are no longer sensitive to hot or cold. I am careful of the stove because I can barely feel heat until its too late, and my arm/leg starts to convulse. Isn't this fun? Not.
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