We allllllll know about the heat!!! That heat that hits and we just drop! There are no if ands or buts about. You are now considered dead weight! 😊🤣
What about the Cold? Who's affected by that? Do you get the MS Hug ( I do) Or does it affect you a different way?
J⛄
With the cold, I lock up. If my feet get cold, then it sets off the burning sensation in my feet and ankles that lasts for hours. I've never found shoes or boots that are truly warm without looking like I'm wearing huge snow boots. In the house, I often wear regular socks covered by a pair of wool socks and then put on over-sized slippers. It's a real fashion statement.
put handwarmers,in your shoes or slippers(the flat kind you put in your pocket)that hunters use.and find some merino wool socks they do work.
Thank you for your tips. I keep forgetting I have some of those warmers for feet and hands. My brother-in-law has electric warmers he uses when he golfs, which he does year round. I think they're pretty expensive, though.
I like the fashion statement. I do the same thing. Several pairs of socks. 🧦
I'm with you...I lock up. When I get chilled to the bone if a warm cup of tea doesn't work to warm me up, it's to the shower. Then to the recliner with a warm throw and a kitty on my lap!
I never related that deep coldness to MS before my diagnosis, but would occasionally feel so chilled to the bone, that only a warm bath or shower would fix it. Now that I know the cause, I won't feel so guilty using all that hot water!
The cold = pain. Need I say more 🥶
the cold is my born enemy my body becomes so stiff it's crazy.
I certainly handle the cold 🥶 better than the heat. Too cold than I stiffen up. The fatigue is not near as bad in the cooler weather 👍. I do have warm clothes for the winter and was out last week with snowblower and did fine. Only fell once🤣😂. Not bad easy fall. Try electric socks 🧦 and gloves 🧤 they do work 👍. 😉🙏🎄 Ken 🐾🐾
I have lost so much sensation in my hands that I am burning and nicking myself constantly. I can't differentiate heat quickly enough to save my fingers from a painful burn when I haven't grasped the pot holder in the middle. And like greaterexp writes, my feet freeze up. My internal thermostat is on the fritz with no repairman in sight! Though the house inside stays a constant temp, sometimes I'm too hot, other times too cold. I keep sweaters, shawls, wraps, wool socks stashed at the ready, so every chair in the house is draped when I have to unwrap. Ach du lieber!
Oh, and don't ask me if I have a headache, because I always do. Extreme heat or cold=instant pain. Sudden barometric pressure change=migraine. Glare=migraine. Wind=migraine. Wear a wool cap for a while and my hair will hurt. Yes, indeed, my sensory system is out of whack.
ok,my tip for cold is go get a $29 .00 electric throw blanket(sunbeam brand),put it on your favorite chair or sofa,I wrap up in it, turn it on and sit on it!warm .
Costco has them on sale right now. I may give in and get one. Even the really warm blanket I keep on the couch doesn't do much for the kind of cold we feel with MS.
My husband got me one years ago. If someone else didn't steal it than that's for me!!
I'm for temps right in the middle. If I'm moving around it's OK, but when I sit for a while I'm cold. I melt when I get too warm, then when I get cold my skin seems to tingle and burn . I can barely tell when my feet are cold, but when I get them warm again they feel hot. I have to sleep with my feet out from under the covers at night, because my feet are so hot!
Hi stranger! How are you? 🤗💕⛄
Doing very well, especially compared to most everybody else. Last year this time I was in a pretty bad exacerbation and needing treatment. But, I'm very thankful to be OK. Now, if I can just get some decorating done for Christmas.
How are you doing now? Didn't you just have surgery?
I hope your exacerbation didn't leave any lasting affects.🤗 And I'm doing good. TY for asking! Just waiting to get permission to take this neck brace off!
I did the decorating, it's the mess, that I don't want to clean up!😂💕🎄
When I get cold, I cannot warm up, or it takes a long time to warm up. And when I do warm up, it's because of a hot flash, and I need to cool down. I am always sporting socks, even when I am in bed, and I have fleece blankets everywhere in my house. I even keep the seat warmer on in my car, and keep it on, ~ all year long. Except that it is now broken! Time for a newer car? The heat bothers me as well. Thank goodness for AC. What am I talking about here, I cannot get comfortable either way... Do you have room in your imagination for me, Jesmcd2 ? Because the temperature sounds just about right there! 
It's actually my planet! And it's a perfect 72!🤣😭🤣 carolek572 🤗💕🎄
Guardians of the Galaxy comes to mind here!
Naw, nothing like that!! Unless you tick me off... 🤣🤣 Then your outta here! 🤣😂🤣
Fair enough
the cold is my worst nightmare. I get stiff and I hurt like crazy, shooting and stabbing pain randomly through my body. Mostly my legs. bones feel brittle like they will shatter with every move or step. Knee caps feel like they want to pop off.
On top of all that and more I have Raynaurds so it 100 times worst for me. the slightest of cold rather i touch something cold or the cold weather my feet and hands instantly turn whitish/yellowish the blood stop flowing to toes and finger tips and they hurt like H***. I can't do anything until I warm them up. No walking too painful. So for my hands(this with wearing gloves) I have to always run them under warm water.) then they turn bright red, then bluish/black, than the normal color. The hand warmers don't do anything for me. I have boxes of the hand and foot warmer. The foot help a little but not much. When I can I have to wrap them up. The electric blanket are a blessing. I have one at home, and at work. A electric heater under my desk for my legs and feet. A fan on my desk for my hot flashes. My doctor tells me to keep them warm so I'm in the winter with gloves and summer with gloves because of the air conditioner. I wrap all cold drinks up with a lot of paper towels or napkins. when I go in the freezer I use gloves and have the warm water running so i can put them straight under the water afterwards. I prefer the summer but it takes so much out of me. Like I said the hot flashes doesn't help at all.
I'm learning to deal with it and what help me get though it is The Lord, My family, and that It could be worst. I'm still fully functioned.
Geeze LissaH I'm so sorry!! I know what Raynaud's is. I just have it so far in 1 finger. I can't imagine what you are going through!
And menopause? Yikes! Bless your heart! 🤗💕⛄
I can't imagine which one finger! Sorry, couldn't help myself
True that!🙈😂🤣😂
thank you its hard, but I have to keep on going.
wow one finger, I cant imagine
Do my symptoms seem like MS to you?
Hot then cold then hot again... Anyone else with broken themostat
How to Build a Self-management Toolbox to Live Better with MS
