Tecfidera

[Susan0528]

Good Morning has anyone heard of tecifedra coming out with new updated reversion of there old pill. My neurologist told me it’s coming out next month.

[greaterexp]

Welcome! Yes, I read a bit about that. The newer version is supposed to be easier on the GI tract. Please let us know if you make the change and what you think about it.

[RoyceNewton]

I take Tecfidera, would be interested in hearing about this

[RoyceNewton]

I just called them and the lady knew nothing after putting me on hold to check it out. No changes is what she said

[Susan0528 in reply to RoyceNewton]

RoyceNewton. 😞I’m only relaying what my neurologist told me yesterday. I wanted to get off of tecfidera cause of the flushing, it totally drains me. I’m not a whiner I’m glad it’s working but every day flushing, feeling tired. It bums a person out. But he told me NO! There’s a new version coming out!

[IFwczs in reply to Susan0528]

Interesting. I had been on Tecfidera for 4 years before my neuro switched me to Ocrevus. I did have flushing which my now fired Chinese doctor attributed to menopause (it was not). So now I have a confirmation it was Tecfidera - I suspected it all along.

[BETHdc in reply to IFwczs]

How is Ocervus working for you?

[IFwczs in reply to BETHdc]

I love it! No side effects, and the science supports it. I wish I had known that Ocrevus had been approved by the FDA when I was stupid to go on Chinese herbs which gave me mercury poisoning.

[bxrmom in reply to Susan0528]

Susan0528 When I first started taking Tecfidera, I took a low dose aspirin before I took my Tefidera and that helped with the flushing. Afer a couple of months I was able to stop taking the low dose aspirin. Hope this helps.

Jessie

[RoyceNewton]

understood, I think he might be telling stories, what about something stronger maybe?

[Susan0528 in reply to RoyceNewton]

I myself was thinking about going back on shots. Maybe to make me realize that tecfidera is the better of two evils. Fingers crossed

[Peruzzot]

I'm on tecfidera as well. I haven't heard about any new versions or strengths of it. How long have you been on tecfidera? I stopped having the flushing effect after about 3 months. It was really bad the first few weeks but got better. After awhile it stopped all together. I was on avonex prior to that and reacted very badly to that. I never want to do injections again.

[Susan0528 in reply to Peruzzot]

I have been on for 6 years. Before that rebif for 8. I can’t take aspirin anymore I’m sick of cottage cheese 😔

[IFwczs in reply to Susan0528]

Aspirin and cottage cheese are both bad for you anyway. I have progressive MS, so I am happy I am on Ocrevus now. My neuro said (and he never says anything) that Ocrevus is the only MS DMT to slow down disability progression. Tecfidera was doing nothing for me.

[Hidden]

I wouldn't be surprised if there is a new version. Several years ago I was asked to participate in a clinical trial of Tecfidera versus a new drug.

[BETHdc]

GM Susan. I havent heard that but thank you for sharing. My doctor wants me to switch to Ocervus but I am not sure.

[carolek572 CommunityAmbassador]

Hmm, Susan0528 I too, have heard that there is an improved version of Tecfidera to soon be released. This one will be gentler on the GI tract. I was on Tecfidera before switching to Ocrevus in 2018. Yes, it was not good for me with regards to the GI tract and the flushing. These would be mitigated with taking a bit of food with it. I also noticed an overall feeling of malaise while on Tecfidera. With Ocrevus, my overall mood is much better. Now, only if I could rid myself of this 'ms'....

[Frances_B in reply to carolek572]

Is this what you are referring to when you mention an "improved version" of Tec? If it is then I reckon it's still a while away from being released on the general market as it's not quite the same drug as Tecfidera but another version of a fumarate.

multiplesclerosisnewstoday....

[carolek572 CommunityAmbassador in reply to Frances_B]

Yes, that is what I was referring to, Frances_B Thank you for finding it

Together, we are all stronger!

[Frances_B in reply to Frances_B]

I was a bit wrong on this one - it looks like this drug got there a whole lot faster than many others - the FDA has just approved it (Vumerity) for use with MS.

(Who are the idiots who come up with these ridiculous brand names.............)

multiplesclerosisnewstoday....

[MarjMar2019]

I am changing from Ocrevus to Tecfidera I start on it today and my MS Specialist here in Denver never mentioned any of that to me. I would be interested in knowing if there is a new pill coming out. This will be my 5th different therapy since 2008. I am hoping for the best. There isn't any other options available. I did well on Ocrevus but I lost all my hair in 1 year and it was super stressful experience it made my condition worst.

[Susan0528 in reply to MarjMar2019]

Hi MarjMar2019 It’s going to the same pill but less gi problems. Your starting out on low dose. Ocrevus that’s the one I wanted to try. I hope you take well to it.

[MarjMar2019 in reply to Susan0528]

I was on Ocrevus for almost 2 years. But I an now bald. My MS Specialist said that if Tecfidera doesn't work for me that I can get back on Ocrevus. I'm hoping to get my hair back and adapt well to Tecfidera but I am also optimistic. Thank younger the message. I hope you are doing well.

[kandykone1 in reply to MarjMar2019]

I didn’t know that was a side effect ?!?

[mepilot61]

I haven't heard about this. it I haven't seen my neurologist since September. I am interested in finding out more about it!

[memarc1120]

Wow no one told me about Ocrevus and losing hair!! Yikes I was also on Tecfidera but it caused me to have severe pneumonia where I was in the hospital for a month. I had a chest tube and was intubated.

Right now I am on Mayzent and the last few days I have a “cold” and boy that makes me worried

[Susan0528 in reply to memarc1120]

Gah, I didn’t know about the pneumonia, my doctor didn’t tell me anything about tecfidera and get pneumonia. 3 years ago I had bilateral pneumonia then after that shingles. But they also claim I have asthma!

[errolsweet53]

I didn't hear anything yet, I'm taking tecfedera now...but I'm going to check...thanks

[Susan0528 in reply to errolsweet53]

Your welcome I hope so far their saying no! Some are saying yes! So of course My fingers are crossed 🤞🏼