Post 528 Amazing thing I learned 30 ... - My MSAA Community

My MSAA Community

9,494 members21,330 posts

Post 528 Amazing thing I learned 30 Sep 2019

RoyceNewton profile image
4 Replies

Okay, it is not that amazing, but it is well worth thinking about. No Death Certificate will say died of ms or any form of ms. That is a fact. It will say cause of death pneumonia, myocardial infarction (heart attack) stroke, "YOU" get the picture. "YOU" and I will not die from ms. Complications possibly, but a Central Nervous System (CNS) illness will not kill us. I am hoping for death caused by doing something truly dumb, "he should have known better we told him not to, but he did anyway". I saw a movie about a quadriplegic paragliding on the weekend, good movie, I want to go like that. What fun, what a view. The impact bit hurts but "YOU" take the good with the bad.

I must have adventures, YOU" must have adventures. I was diagnosed at twenty-eight or twenty-nine years of age. I should live into my seventies according to the averages. That is forty-odd years with Relapsing-Remitting ms (RRms). That is far too long to sit in a dark corner weeping. "YOU and I must live. We must find adventures, create a purpose for getting out of bed or off the couch each day. I have my disabilities, there are things I can not do just like "YOU", BUT there are things we can do and we should strive to do therm Perhaps tomorrow they can not be done or we change our mind, but "YOU" need to keep finding yourself a goal. No matter how ridiculous it may seem to others or how often "YOU" fail. There is plenty of time to rest when "this body is six feet under dirt.

Until that time go out there and live the best life that "YOU" possibly can. Rest in your cold dark corner, but remember that it is no place to live.

What can "YOU" do and what do "YOU" need to start doing it? This is a doable disease, incurable, chronic, progressive but and it is a big BUT, totally liveable. So why do "YOU" not live it and live it really really well? There is nothing in this illness that can not be coped with once "YOU" decide to cope with it. It merely takes "YOU" making a choice to cope with it.

Royce (the ms writer)

make a choice for you, to live your best possible ms life

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
4 Replies
falalalala profile image
falalalala

Meanwhile, chew your food thoroughly because to die of choking on a chicken leg would be embarrassing. For some. Definitely,me.Yeah. :)

RoyceNewton profile image
RoyceNewton in reply tofalalalala

yes, and I have swallowing issues, chewing my food is a good idea

falalalala profile image
falalalala in reply toRoyceNewton

It sure is!

twooldcrows profile image
twooldcrows

well said...that is how i feel ....we go to the beach and play in the sand for i can drive our toy out there and go fast just love the freedom it brings me ...i can't run so i drive like a car driver racer ...it is so great and i giggle all the time for i can climb big hills and go down deep in valleys ...it is so fun...at the top i can see every where i look so this is what i do now for i know at some time in the future i won't be able to see that far so i am doing what i can now and having so much fun doing it ..that is what everyone needs is find something that makes them giggle ..really gives me a big lift in my spirits more than anything has ever done for me ..we have been playing in the sand for so long but it is so much more fun and has more meaning to my life...enjoy life...

Not what you're looking for?

You may also like...

Post 529 Assume I am wrong 30 Sep 2019 2

Your daily legal Notice. I am not a medical professional of any sort, nor do I play one on...
RoyceNewton profile image

Post 527 A mistake I think 28 Sep 2019

A mistake I think or at least not as clear as I should be. I shall try again. This is an...
RoyceNewton profile image

Post 523 This is not a fatal condition 26 Sep 2019 2

No never. it is lifelong. It is progressive. It is incurable. One thing it most certainly...
RoyceNewton profile image

Post 506 RRms be in it for the long haul 12 Sep 2019

I am and so are "YOU" A very long journey. I anticipate another twenty or thirty years....
RoyceNewton profile image

Post 542 Am I a burden 12 Oct 2019 3

I have to get off this page and get about my day, but... Hmm do I fear death, no why would I fear...
RoyceNewton profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.